Publications of PERRIN

Publications of PERRIN All scientific publications are available. If you are interested, please let us know: perrin@dehoogstraat.nl (make clear which paper you are interested in, and we send you an electronic copy) Abstracts of publications can be found at: http://www.ncbi.nlm.nih.gov/pubmed/ 2012 Scientific publications Alsem MW, Ketelaar M, Verhoef M. The course of health-related quality of life of preschool children with cerebral palsy. Disability and Rehbilitation 2013; 35(8): 686-693. Bult MK, Verschuren O, Lindeman E, Jongmans MJ, Westers P, Claassen A, Ketelaar M. Predicting leisure participation of school-aged children with cerebral palsy: longitudinal evidence of child, family and environmental factors. Child: Care, Health, and Development 2012; 39(3): 374-380. Wiegerink DJ, Stam HJ, Ketelaar M, Cohen-Kettenis PT, Roebroeck ME, The Transition Research Group South West Netherlands. Personal and environmental factors contributing to participation in romantic relationships and sexual activity of young adults with cerebral palsy. Disabil Rehabil. 2012; 34(17): 1481-1487. Presentations and abstracts international congresses Rooijen M van, Verhoeven L, Smits DW, Ketelaar M, Becher JG, Steenbergen B. The influence of cognitive factors on the development of artithmetic performance of primary-school children with cerebral palsy. Developmental Medicine & Child Neurology 2012; 54 (Suppl 3): p 10. Oral presentation European Academy of Childhood Disability (EACD), Istanbul, Turkey, 16-19th May 2012. Smits DW, Gorter JW, Hanna SE, Dallmeijer AJ, van Eck M, Roebroeck M, Vos RC, Ketelaar M. Longitudinal development of gross motor function in Dutch children and youth with CP: an investigation of motor growth curves for ages 1-24 years. Developmental Medicine & Child Neurology 2012; 54 (Suppl 6): p 47 48. Oral presentation American Academy for Cerebral Palsy and Developmental Medicine 66th Annual meeting, Toronto, Canada, 12-15 Sept 2012. Smits DW, Vos RC, Tan SS. PERRIN+: the longitudinal development of activities and participation in children and youth with cerebral palsy. Oral presentation, Dutch-ACD, PERRIN+, LEARN2MOVE Symposium - Cerebrale parese: What s new?!, Utrecht, Netherlands, 30 November 2012. Smits DW, Vos RC, Tan SS. Lifespan expectations for individuals with cerebral palsy. Nederlands Tijdschrift voor Revalidatiegeneeskunde 2012; 34(5): 244. Congress reader. Innovation: From creation to implementation. Mini symposium (oral presentation). VRA Annual Congress 2012. Noordwijkerhout, the Netherlands, 1-2 November 2012. Tan SS, Wiegerink D, Ketelaar M, Smits DW, Voorman JM, Vos RC, Roebroeck ME. Developmental trajectories of social participation in individuals with cerebral palsy aged 1-24. Proceedings of the 4th International Cerebral Palsy Conference, pp 84-85.Oral Presentation. Pisa, Italy, 10-13 October 2012. Tan SS, Dallmeijer AJ, Ketelaar M. Lifespan expectations for individuals with cerebral palsy. Proceedings of the 4th International Cerebral Palsy Conference, p 74. Instructional Course. Pisa, Italy, 10-13 October 2012. Vos RC, Becher JG, Ketelaar M, Smits DW, Voorman J, Roebroeck M, Reinders-Messelink H, Lindeman E, Dallmeijer A. Developmental trajectory of performance of daily and motor activities in individuals with cerebral palsy: the Dutch PERRIN+-study. Developmental Medicine & Child Neurology 2012; 54 (Suppl 6): p 25-26. Poster presentation American Academy for Cerebral Palsy and Developmental Medicine 66th Annual meeting, Toronto, Canada, 12-15 Sept 2012. 1

2011 Scientific publications Rooijen M van, Verhoeven L, Smits DW, Ketelaar M, Becher JG, Steenbergen B. Arithmetic performance of children with cerebral palsy: The influence of cognitive and motor factors. Research in Developmental Disabilities 2011;33:530-537. Smits DW, Ketelaar M, Gorter JW, van Schie P, Dallmeijer A, Jongmans M, Lindeman E. Development of daily activities in school-age children with cerebral palsy. Research in Developmental Disabilities 2011;32:222-34. Smits DW, Ketelaar M, Gorter JW, van Schie P, Becher JG, Lindeman E, Jongmans M. Development of non-verbal intellectual capacity school-age children with cerebral palsy. Journal of Intellectual Disability Research 2011; 55: 550-562. Wiegerink DJHG, Roebroeck ME, Bender J, Stam HJ, Cohen-Kettenis PT. Transition Research Group Southwest Netherlands. Sexuality of young adults with cerebral palsy: experienced limitations and needs. Sexuality and Disability 2011;29(2): 119-128. PhD Theses Nieuwenhuijsen C. Adults with Cerebral Palsy. Studies on physical activity, fitness and experienced problems. PhD Thesis Erasmus MC, University Medical Centre, 2011, Rotterdam. Smits DW. Daily activities of school-age children with cerebral palsy: development and learning. PhDthesis University Medical Center Utrecht, 2011, Utrecht (Chapters in) Books Wiegerink DJHG. Kinderrevalidatie: Blik op wetenschap. In: Post M et al (Red). Revalidatiepsychologie: Mensen leren leven met...; Hoofdstuk: Kinderrevalidatie: Aandacht voor ouders en kinderen met diverse problemen. Nederlands Instituut van Psychologen (NIP), sectie Revalidatie, Utrecht, 2011. Professional publications Smits DW. Ontwikkeling van dagelijkse vaardigheden bij kinderen met cerebrale parese. [Interview] BOSK Magazine 2011; 1: 35. Smits DW. Daily activities of school-age children with cerebral palsy: development and learning. Nederlands Tijdschrift voor Revalidatiegeneeskunde 2011; feb: 35-37. Wiegerink DJHG, Roebroeck ME, Stam HJ, Cohen-Kettenis PT. Relatievorming en seksuele ontwikkeling bij jongvolwassenen met cerebrale parese. Tijdschrift voor Seksuologie 2011; 35: 187-194. Wiegerink DJHG. Romantic relationships and sexual experiences of adolescents and Young adults with cerebral palsy. Ned. Tijdschrift voor Revalidatiegeneeskunde 2011; 1: 38-40. Wiegerink DJHG. Ook dat nog...praten over seks. NIP Nieuwsbrief Sectie Revalidatie 2011; 26(62): 9-10. Presentations and abstracts international congresses Harmer-Bosgoed M, Willems M, Berdenis van Berlekom S, Ketelaar M. Knowledge Brokers Successful in Implementation. 8 Knowledge brokers in 1 network achieve more than 200 professionals alone! Posterpresentatie International Forum on Quality and Safety in Health Care. Amsterdam, 6 april 2011. Ketelaar M, Gorter JW, Westers P, Hanna SE, Verhoef M. Development of mobility capability in young children with cerebral palsy. Poster presentation European Academy of Childhood Disability (EACD), Rome, Italy, 9-11 June 2011. 2

Smits DW, Ketelaar M, Gorter JW, Van Schie PEM, Dallmeijer AJ, Jongmans MJ, Lindeman E. Selfcare activities of school-age children with cerebral palsy: development and determinants. Presentation (free paper) American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Las Vegas, Nevada, USA, 12-15 October 2011. Wiegerink D, Linroth R, Labhard S. Let s talk about sex. Instructional course American Academy of Cerebral palsy and developmental Disorders (AACPDM), Las Vegas, Nevada, 10-14 October 2011 3

2010 Scientific publications Alsem MW, Verhoef M, Buis LI, Ketelaar M. De gezondheidsgerelateerde kwaliteit van leven van kinderen met cerebrale parese op de leeftijd van 2,5 jaar. Tijdschrift voor Kindergeneeskunde 2010; 78(1): 7-14. Eck M van, Dallmeijer AJ, van Lith IS, Voorman JM, Becher JG. Manual ability and its relationship with daily activities in adolescents with cerebral palsy. Journal of Rehabilitation Medicine 2010; 42: 493-498. Janssen CGC, Voorman JM, Becher JG, Dallmeijer AJ, Schuengel C. Course of health-related quality of life in 9-16-year-old children with cerebral palsy: Associations with gross motor abilities and mental health. Disability and Rehabilitation 2010;32(4):344-51. Ketelaar M, Wassenberg-Severijnen J. Developments in measuring functional activities: Where do we go with the PEDI-CAT? Physical and Occupational Therapy in Pediatrics 2010; 30(3): 185-189. Meester-Delver A, Beelen A, van Eck M, Voorman J, Dallmeijer A, Nollet F, Becher JG. Construct validity of the Capacity Profile in adolescents with cerebral palsy. Clinical Rehabilitation 2010;24(3):258-266. Meeteren J van, Nieuwenhuijsen C, de Grund A, Stam HJ, Roebroeck ME, the Transition Research Group South West Netherlands. Using the Manual Ability Classification System (MACS) in young adults with cerebral palsy and normal intelligence. Disability and Rehabilitation 2010; 32(23): 1885-1893. Rentinck IC, Ketelaar M, Schuengel C, Stolk J, Lindeman E, Jongmans MJ, Gorter JW. Short-term changes in parents' resolution regarding their young child's diagnosis of cerebral palsy. Child: Care, Health & Development 2010; 36: 703-708. Sipal RF, Schuengel C, Voorman JM, Van Eck M, Becher JG. Course of behaviour problems of children with cerebral palsy: the role of parental stress and support. Child: Care, Health & Development 2010 Jan;36(1):74-84. Smits DW, van Groenestijn AC, Ketelaar M, Scholtes VA, Becher JG, Gorter JW. Selective motor control of the lower extremities in children with cerebral palsy: Inter-rater reliability of two tests. Developmental Neurorehabilitation 2010;13(4):258-265. Smits DW, Gorter JW, Ketelaar M, VAN Schie PE, Dallmeijer AJ, Lindeman E, Jongmans MJ. Relationship between gross motor capacity and daily-life mobility in children with cerebral palsy. Developmental Medicine and Child Neurology 2010; 52: e60-e66. Voorman JM, Dallmeijer AJ, van Eck M, Schuengel C, Becher JG. Course of social functioning and communication in children with cerebral palsy: associations with disease characteristics, personal and environmental factors. Developmental Medicine and Child Neurology 2010;52(5):441-7. Wiegerink DJHG, Roebroeck ME, van der Slot WMA, Stam HJ, Cohen-Kettenis PT and the Transition Research Group South West Netherlands. Importance of peers and dating in development of romantic relationships and sexual career among young adults with cerebral palsy. Developmental Medicine and Child Neurology 2010;52:576-582. Wiegerink DJHG, Stam HJ, Gorter JW, Cohen-Kettenis PT, Roebroeck ME and the Transition Research Group South West Netherlands. Development of romantic relationships and sexual activity in young adults with cerebral palsy: a longitudinal study. Archives of Physical Medicine and Rehabilitation 2010;91(9):1423-1428. Zwier JN, van Schie PEM, Becher JG, Smits DW, Gorter JW, Dallmeijer AJ. Physical activity in Young children with cerebral palsy. Disability and Rehabilitation 2010;32(18):1501-8. PhD Thesis Wiegerink DJHG. Romantic relationships and sexual experiences of adolescents and young adults with cerebral palsy. Dissertation Erasmus University Rotterdam, the Netherlands, 2010. Professional publications Faber R. Cerebrale parese: een grote groep in de kinderrevalidatie. Revalidatie Magazine 2010; 16(2): 18-19. 4

Harmer-Bosgoed M, Willems M, Van der Sanden K, Ketelaar M. Knowledge Brokers PERRIN, bruggenbouwer tussen zorg en onderzoek. Revalidata 2010; 32 (158): 23-25. Smits DW. Ontwikkeling van dagelijkse vaardigheden bij kinderen met een hersenbeschadiging. Persbericht]. BOSK Magazine 2010; 5: 34. Willems M. Bruggenbouwer tussen zorg en onderzoek. Revalidatie Magazine 2010; 16(2): 16-17 Wiegerink D, Roebroeck M, Stam H, Cohen-Kettenis P. Problemen met seks bij jongvolwassenen met cerebrale parese. Revalidata 2010; 155: 17-20. Presentations and abstracts international congresses Dallmeijer AJ, Voorman JM, van Eck M, Becher JG. Motor functioning of children with cerebral palsy during transition to adolescence. Developmental Medicine & Child Neurology 2010; 52(Suppl. 4): 8. Presentatie European Academy of Childhood Disability (EACD), Brussels, Belgium, 27-29 May 2010. Hilberink SR, van der Slot WMA, Jedeloo S, van Meeteren J, Wiegerink DJHG, Roebroeck ME. TransitieNet - A national network to implement lifespan care in the Netherlands. Description of network activities and evaluation. Presentation Transitions Conference 5 Bloorview Rehab, Toronto, Canada, June 2010. Ketelaar M, Harmer-Bosgoed M, Willems M, Russell D, Rosenbaum P. Moving research evidence into clinical practice: the role of knowledge brokers. Developmental Medicine & Child Neurology 2010; 52(Suppl. 4): 66. Instructional course European Academy of Childhood Disability (EACD), Brussels, Belgium, 27-29 May 2010. Ketelaar M. Knowledge Brokers PERRIN. Presentatie Research-meeting CanChild. 4 februari 2010. Ketelaar M. Knowledge Brokers getting knowledge from researchers to practitioners. Presentatie Research-meeting Health Sport Center Beitostolen, Noorwegen. 5 maart 2010. Ketelaar M, Harmer-Bosgoed M, Willems M, Verschuren O, Verhoef M. The role of knowledge brokers in the implementation of evidence-based measures in Multidisciplinary teams: an example of the GMFCS and MACS. Developmental Medicine & Child Neurology 2010; 52(Suppl. 5): 58. Presentation American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Washington, USA, 22-25 Sept 2010. Kruijver E, de Grund A, Schipper D, Rijnsent M, van Hoewijk J, Bender J, Breed P, Hilberink S. Friendships, intimate relationships and sexuality a program for adolescents to enhance selfconfidence and social skills. Poster presentation Transitions Conference 5 Bloorview Rehab, Toronto, Canada, June 2010. Roebroeck ME, van den Berg-Emobs HJG, Nieuwenhuijsen C, Hilberink SR, van der Slot WMA, van Meeteren J, Stam H, the Transition Research Group South West Netherlands and the Transition Network. Innovating transition and lifespan care for people with cerebral palsy.. Developmental Medicine & Child Neurology 2010; 52 (Suppl. 4):74. Presentation European Academy of Childhood Disability (EACD), Brussels, Belgium, 27-29 May 2010. Russell DJ, Ketelaar M, Gorter JW, Darrah J, Roxborough L, Cameron D. Knowledge Brokering: A strategy to help move measures into practice. Book of Abstracts, p 22-23. Instructional course American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Washington, USA, 22-25 Sept 2010. Russell DJ, Rivard LM, Roxborough L, Ketelaar M, Bartlett DJ, Rosenbaum PL. Encouraging the uptake of evidence-based measures among pediatric physical therapists: knowledge broker activities and experiences. Developmental Medicine & Child Neurology 2010; 52(Suppl. 5): 83. Posterpresentation American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Washington, USA, 22-25 Sept 2010. Voorman JM, van Eck M, Dallmeijer AJ, Becher JG. Motor functioning of children with cerebral palsy during transition to adolescence. Developmental Medicine & Child Neurology 2010; 52(Suppl. 4): 8. Presentation European Academy of Childhood Disability (EACD), Brussels, Belgium, 27-29 May 2010. Wiegerink DJHG, Roebroeck ME, Stam HJ, Cohen-Kettenis PT and the Transition research Group South West Netherlands. Importance of peers and dating in development of romantic relationships and sexual activity of young adults with cerebral palsy. Developmental Medicine & Child Neurology 5

2010; 52 (Suppl. 4):56. Presentation European Academy of Childhood Disability (EACD), Brussels, Belgium, 27-29 May 2010. Wiegerink D, Cohen-Kettenis P, Stam HJ, Roebroeck M. Sexualityof young adults with cerebral palsy:experienced limitations end needs Developmental Medicine & Child Neurology 2010; 52(Suppl. 5): 22. Presentation American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Washington, USA, 22-25 Sept 2010. 6

2009 Scientific publications Donkervoort M, Wiegerink DJHG, van Meeteren J, Stam HJ, Roebroeck ME. Transition to adulthood: validation of the Rotterdam Transition Profile for young adults with cerebral palsy and normal intelligence. Developmental Medicine and Child Neurology 2009; 51: 53-62. Eck M van, Dallmeijer AJ, Voorman JM, Becher JG. Longitudinal study of motor perfomance and its relation to motor capacity in children with cerebral palsy. Dev Med Child Neurol. 2009 Apr;51(4):303-10. Gorter JW, Ketelaar M, Rosenbaum P, Helders PJ, Palisano R. Use of the GMFCS in infants with CP: the need for reclassification at age 2 years or older. Developmental Medicine and Child Neurology 2009; 51: 46-52. Gorter JW, Verschuren O, van Riel L, Ketelaar M. The relationship between spasticity in young children (18 months of age) with cerebral palsy and their gross motor function development. BMC Musculoskeletal Disorders 2009; 10:108. Holsbeeke L, Ketelaar M, Schoemaker M, Gorter JW. Capacity, capability, and performance: Different constructs or three of a kind? Archives of Physical Medicine and Rehabilitation 2009; 90: 849-855. Meester-Delver A, Beelen A, Ketelaar M, Hadders-Algra M, Nollet F, Gorter JW. Construct validity of the Capacity Profile in preschool children with cerebral palsy. Developmental Medicine and Child Neurology 2009; 51: 446-453. Nieuwenhuijsen C, Donkervoort M, Nieuwstraten W, Stam HJ, Roebroeck ME, the Transition Research Group South West Netherlands. Experienced problems of young adults with cerebral palsy: Targets for rehabilitation care. Archives of Physical Medicine and Rehabilitation 2009; 90: 1891-1897. Plasschaert VFP, Ketelaar M, Nijnuis MG, Enkelaar L, Gorter JW. Classification of manual abilities of children with cerebral palsy under 5 years of age: how reliable is the Manual Ability Classification System? Clinical Rehabilitation 2009; 23: 164-170. Rentinck IC, Ketelaar M, Jongmans MJ, Lindeman E, Gorter JW. Parental reactions following the diagnosis of cerebral palsy in their young child. Journal of Pediatric Psychology 2009; 34: 671-676. Rentinck IC, Gorter JW, Ketelaar M, Lindeman E, Jongmans MJ. Perceptions of family participation among parents of children with cerebral palsy followed from infancy to toddlerhood. Disability and Rehabilitation 2009; 31(22): 1828-1834. Roebroeck ME, Jahnsen R, Carona C, Twyford A, Twyford M, Kent RM, Chamberlain MA. Adult outcomes and lifespan issues for persons with childhood-onset disability. Developmental Medicine and Child Neurology 2009; 51: 670-678. Schuengel C, Rentinck IC, Stolk J, Voorman JM, Loots GM, Ketelaar M, Gorter JW, Becher JG. Parents' reactions to the diagnosis of cerebral palsy: associations between resolution, age and severity of disability. Child: Care, Health & Development 2009; 35: 673-680. PhD Theses Rentinck ICM. Parental adaptation in families of young children with cerebral palsy. Dissertation Utrecht University, the Netherlands. Voorman JM. Cerebral palsy and the transition to adolescence. Course of functioning, self-perception and quality of life. Dissertation VU University Medical Center Amsterdam, the Netherlands. (Chapters in) Books Bosgoed MW. Meten van dagelijkse activiteiten met de PEDI-NL. In: Leerboek VRA: Klinimetrie bij kinderen en jongeren met een beperking 2009, p. 89-91. Nijmegen: PAOG/VRA. Ketelaar M. Een meetinstrument kiezen: Waar let ik op? In: Leerboek VRA: Klinimetrie bij kinderen en jongeren met een beperking 2009, p. 10-14. Nijmegen: PAOG/VRA. Professional publications / Vakpublicaties Bosgoed MW. Nieuwe functie: Knowledge Broker. Revalidatie Magazine 2009; 15(1): 6. 7

Bosgoed MW, Willems M. Knowledge broker brengt wetenschap naar de praktijk. Op de Hoogte, juni 2009. Faber R. Beter begeleiden naar volwassenheid. Revalidatie Magazine 2009; 15(1): 16-17. Gorter JW, van Tol E, van Schie P, Ketelaar M. De herziene en uitgebreide versie van de Gross Motor Function Classification System (GMFCS-E-R). Revalidata 2009; 31(150): 2-5. Gorter JW, van Tol E, Schie PEM, Ketelaar M. Acht jaar na de introductie van de Gross Motor Function Classification System (GMFCS) in Nederland: een update. Nederlands Tijdschrift voor Kinderfysiotherapie 2009;21(63):32-34. Noordstar JJ, Smits DW, Gorter JW. Het zelf-concept bij kinderen met cerebrale parese: een literatuurstudie. Beweegreden 2009; 3: 32-35. BOSK Magazine (Tijdschrift Oudervereniging) Gorter JW, Ketelaar M. Revalidatieonderzoek bij jonge kinderen met cerebrale parese. BOSK Magazine 2009; nr 4: 32-33. Ketelaar M, Harmer-Bosgoed MW. Revalidatieonderzoek bij kinderen, adolescenten en jongvolwassenen met cerebrale parese. BOSK Magazine 2009; nr 5: 32-33. Roebroeck M, Wiegering D, Donkervort M, van Nieuwenhuijsen C, van Meeteren J. Revalidatieonderzoek bij jongvolwassenen met cerebrale parese; Een knip in de zorg. BOSK Magazine 2009, nr 2: 35. Smits DW, van Schie PEM. Revalidatieonderzoek bij kinderen met cerebrale parese; PERRIN CP 5-9. BOSK Magazine 2009; nr 1: 35. Voorman J, van Eck M. PERRIN CP 9-16 jaar: Een onderzoek naar de functionele prognose van kinderen met cerebrale parese in de leeftijd van 9 tot 16 jaar. BOSK Magazine 2009; nr 3: 35. Presentations and abstracts international congresses Eck M van, Voorman J. PERRIN 9-16: Functioning of children with Cerebral Palsy during transition to adolescence. Abstract book, p 24. Presentatie International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november 2009. Gorter JW, Ketelaar M, Verhoef M. Development of gross motor function among young children (age 18-42 months) with cerebral palsy. Developmental Medicine and Child Neurology 2009; 51 (Suppl. 2): 11-12. Presentatie Third International Cerebral Palsy Conference, Sydney, Australia, 18-21 February 2009. Hilberink SR, Jedeloo S, Floothuis M, van Meeteren J, Verhoef JAC, Roebroeck ME. Lifespan care session (aimed at youth and adults with CP). Workshop International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november 2009. Hilberink SR, van der Slot WA, Wiegerink DJHG, Roebroeck ME. Lifespan care session (aimed at professionals). Workshop International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november 2009. Ketelaar M. Knowledge Brokers Getting knowledge from researchers to practitioners. Invited lecture Norwegian Conference for Pediatric Physical Therapy. Oslo, Norway, 9-11 March 2009. Ketelaar M, Holsbeeke L, Schoemaker M, Gorter JW. Capacity, capability, and performance: different constructs or three of a kind? Developmental Medicine and Child Neurology 2009; 51 (Suppl. 2): 62. Presentatie Third International Cerebral Palsy Conference, Sydney, Australia, 18-21 February 2009. Ketelaar M, Becher JG, Roebroeck M, Willems M. PERRIN: Communication between professionals and researchers. A workshop bridging the gap between research and practice. Revalidata 2009; 31(nr 151): 11. Workshop Jaarcongres VRA. Ermelo, 30 oktober 2009. Ketelaar M, Bosgoed M, Willems M. Knowledge Brokers: What are they and how can they help move research evidence into clinical practice? Abstract book, p 36. Workshop International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november 2009. Meester-Delver A, Beelen A, Ketelaar M, Hadders-Algra M, Nollet F, Gorter JW. Construct validity of the capacity profile in preschool children with cerebral palsy. Developmental Medicine and Child Neurology 2009; 51 (suppl. 5): 61. Poster American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Scottsdale, USA, 23-26 September 2009. Rentinck ICM, Ketelaar M, Schuengel C, Lindeman E, Jongmans MJ, Gorter JW. Parental reactions following the diagnosis of cerebral palsy in their young child. Abstract book, p 29. Presentatie 8

International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november 2009. Roebroeck ME and the Transition and lifespan Research Group. The Rotterdam Transition profile in practice. Young adults with cerebral palsy and normal intelligence. Presentation (via audio link), Young people s health special interest group Conference (Royal College of Paediatrics and Child health): Young people with Chronic Conditions. Birmingham UK, 1-2 october 2009. Roebroeck M, Donkervoort M, Wiegerink D, Nieuwenhuijsen C, Stam HJ. Adolescents and young adults with cerebral palsy: Do environmental and personal factors contribute to participation in society? Abstract book, p 29-30. Presentation International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november 2009. Roebroeck M, Transition Research Group South West Netherlands. Transition into adulthood and lifespan care for (young) adults with cerebral palsy. Abstract book, p 19. Presentation International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november 2009. Russell D, Ketelaar M, Cameron D, Darrah J, Gorter JW, Rosenbaum P, Roxborough L. Knowledge Brokers: What are they and How can they help move cerebral palsy research into clinical practice. Conference Proceedings, p. 103. Presentatie Third International Cerebral Palsy Conference, Sydney, Australia, 18-21 February 2009. Schie PEM van, Zwier N, Becher J, Smits DW, Gorter JW, Dallmeijer A. Physical activities in 5 and 7 years old children with cerebral palsy. Conference Proceedings, p. 118. Presentatie Third International Cerebral Palsy Conference, Sydney, Australia, 18-21 February 2009. Schuengel, C. Parents resolution of diagnosis. Paper presented at the International Symposium on A global status quo on cerebral palsy, with a view to the future, Utrecht, 5-7 november 2009. Schuengel, C. Veerkracht en kwetsbaarheid bij ouders van kinderen met aandoeningen en beperkingen. Plenaire lezing op het eerste symposium Pediatrische Psychologie, Amsterdam. 4 juni 2009. Smits DW, Gorter JW, Ketelaar M, van Schie PEM, Dallmeijer A, Lindeman E, Jongmans M. The relationship between gross motor capacity and performance of daily life mobility in children with cerebral palsy at primary school age. Conference Proceedings, p. 74. Presentatie Third International Cerebral Palsy Conference, Sydney, Australia, 18-21 February 2009. Smits DW, Gorter JW, Ketelaar M, van Schie PEM, Dallmeijer AJ, Lindeman E, Jongmans MJ. Relationship between gross motor capacity and daily-life mobility in children with cerebral palsy. Abstract book, p 33-34. Presentatie International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november 2009. Sobus K, Maxwell J, Healy H, Ruck-Gibis J, Roebroeck M, Wiegerink D, Linroth R. Comparing and contrasting transition service models from the United States, Canada and the Netherlands. Breakfast session American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Scottsdale, USA, 23-26 September 2009. Verhoef M, Ketelaar M, Siebes R, Rentinck I, Gorter JW. A longitudinal study of parents perceptions of family-centeredness of services for their Young child with cerebral palsy. Developmental Medicine and Child Neurology 2009; 51 (suppl. 5): 60. Poster American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Scottsdale, USA, 23-26 September 2009. Weerd GH van de, Smits DW, Gorter JW, Ketelaar M. Cognitive capacity in 6- and 7-year-old children with cerebral palsy. Abstract book, p 47. Poster International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november 2009. Wiegerink D, Roebroeck M, Stam H, Cohen-Kettenis P. Importance of peers and dating in development of romantic relationships among Young adults with cerebral palsy. Developmental Medicine and Child Neurology 2009; 51 (suppl. 5): 11. Presentation American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Scottsdale, USA, 23-26 September 2009. 9

2008 Scientific publications Eck M van, Dallmeijer AJ, Voorman JM, Becher JG. Skeletal maturation in children with cerebral palsy and its relationship with motor functioning. Dev Med Child Neurol. 2008 Jul; 50(7): 515-9 Eck M van, Dallmeijer AJ, Beckerman H, van den Hoven PA, Voorman JM, Becher JG. Physical activity level and related factors in adolescents with cerebral palsy. Pediatr Exerc Sci. 2008 Feb ; 20(1) : 95-106. Enkelaar L, Ketelaar M, Gorter JW. Association between motor and mental functioning in toddlers with cerebral palsy. Dev Neurorehabil 2008; 11: 276-282. Ketelaar M, Russell DJ, Gorter JW. The challenge of moving evidence-based measures into clinical practice: Lessons in knowledge translation. PhysOcc Ther in Ped 2008; 8:191-206. Meeteren J van, Roebroeck, ME, Celen E, Donkervoort M, Stam HJ, Transition Research Group South West Netherlands. Functional activities of the upper extremity of young adults with cerebral palsy: a limiting factor for participation? Disabil Rehabil 2008:30(5): 387-95. Nieuwenhuijsen C, Y van de Laar, M Donkervoort, W Nieuwstraten, ME Roebroeck, HJ Stam. Unmet needs and health care utilization in young adults with cerebral palsy. Disabil Rehabil 2008; 30(17): 1254-1262. Nijhuis BJG; Reinders-Messelink HA; Blécourt ACE de; Calame EHM; Boonstra AM; Groothoff JW; Nakken H; Postema K. Goal setting in Dutch paediatric rehabilitation. Are the needs and principal problems of children with cerebral palsy integrated into their rehabilitation goals. Clin Rehabil 2008; 22: 348-363. Nijhuis BJG; Reinders-Messelink HA; Blécourt ACE de; Ties JG; Boonstra AM; Groothoff JW; Nakken H; Postema K. Needs, problems and rehabilitation goals of young children with cerebral palsy as formulated in the Rehabilitation Activities Profile for Children. J Rehabil Medicine 2008; 40: 347-354. Siebes RC, Nijhuis BJ, Boonstra AM, Ketelaar M, Wijnroks L, Reinders-Messelink HA, Postema K, Vermeer A. A family-specific use of the Measure of Processes of Care for Service Providers (MPOC-SP). Clinical Rehabilitation 2008;22:242-251. Wiegerink DJHG, Roebroeck ME, Donkervoort M, Cohen-Kettenis PT, Stam HJ. Social, intimate and sexual relationships of adolescents and young adults with cerebral palsy compared with healthy age mates. J Rehabil Med 2008: 40: 112-118. (Chapters in) Books Wiegerink DJHG, Gorter JW. Cerebrale Parese. In: WL Gianotten, MJ Meihuizen-de Regt, N van Son- Schoones (Red), Seksualiteit bij ziekte en lichamelijke beperking. Assen, Van Gorcum; 2008. p. 211-220. Professional publications / Vakpublicaties Gorter JW, Nijhuis B. Interview. Noodzaak voor een gemeenschappelijke taal. In: M.Evenblij. Voorspellen van herstellen. Uitkomsten van revalidatieonderzoek. Den Haag, ZonMw Stiumlerinsgprogramma Revalidatieonderzoek, 2008; p.135-136. Ketelaar M, Lindeman E. Interview. Revalidatie van kinderen. In: M.Evenblij. Voorspellen van herstellen. Uitkomsten van revalidatieonderzoek. Den Haag, ZonMw Stiumlerinsgprogramma Revalidatieonderzoek, 2008; p.129-130. Ketelaar M, Lindeman E. Interview. Revalidatietherapeut als coach. In: M.Evenblij. Voorspellen van herstellen. Uitkomsten van revalidatieonderzoek. Den Haag, ZonMw Stiumlerinsgprogramma Revalidatieonderzoek, 2008; p.131-135. Nijhuis BJG, ICF-CY één taal voor de kinderrevalidatie. Revalidatie Magazine 14(3), September 2008. Nijhuis BJG, Samenwerken in de Kinderrevalidatie; gezinsgericht en doelgericht. Revalidata 30 (145), oktober 2008. Roebroeck ME. Interview. Adolescenten in transitie. Gevaar van discontinuïteit van zorg. In: M.Evenblij. Voorspellen van herstellen. Uitkomsten van revalidatieonderzoek. Den Haag, ZonMw Stiumlerinsgprogramma Revalidatieonderzoek, 2008; p.137-139. 10