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1 Cover Page The handle holds various files of this Leiden University dissertation. Author: Boetzelaer-van Hulsteijn, Leonie Theresia van Title: Paragangliomas Pictured Issue Date:

2 CURRICULUM VITAE Leonie Theresia van Boetzelaer van Hulsteijn werd geboren op 30 maart 1984 te Curaçao. In 1985 verhuisde zij naar Brabant, waar zij de rest van haar jeugd doorbracht. Zij behaalde haar gymnasiumdiploma in 2002 aan het Zwijsen College te Veghel. Datzelfde jaar begon zij aan de studies Farmacie en Economie aan de Universiteit van Utrecht. In 2003 besloot zij medicijnen te gaan studeren en werd ingeloot voor de studie Geneeskunde te Utrecht. Na het behalen van haar arts-examen in 2010 startte zij met promotie-onderzoek op de afdeling Endocrinologie van het Leids Universitair Medisch Centrum. Onder leiding van dr. E.P.M. van der Kleij-Corssmit en prof. dr. J.W.A. Smit heeft zij wetenschappelijk onderzoek verricht op het gebied van paragangliomen. De resultaten hiervan staan in dit proefschrift beschreven. In mei 2013 is zij begonnen aan de opleiding interne geneeskunde in het HagaZiekenhuis te Den Haag (opleiders dr. M.O. van Aken en prof. dr. J.W. de Fijter). 287

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4 LIST OF PUBLICATIONS van Hulsteijn LT, Niemeijer ND, Dekkers OM, Corssmit EP (2013) 131 I-MIBG therapy for malignant paraganglioma and pheochromocytoma: systematic review and meta analysis. Clin Endocrinol (Oxf) doi: /cen van Hulsteijn LT, Kaptein AA, Louisse A, Biermasz NR, Smit JW, Corssmit EP (2013) Illness perceptions, risk perception and worry in SDH mutation carriers. Fam Cancer van Hulsteijn LT, Kaptein AA, Louisse A, Smit JW, Corssmit EP (2013) Avoiding and nonexpressing: coping styles in patients with paragangliomas. J Clin Endocrinol Metab 98: van Hulsteijn LT, van Duinen N, Ninaber MK, Romijn JA, van Dijk JG, van Kralingen KW, Havekes B, Smid L, Lammers GJ, Jansen JC, Smit JW, Thijs RD, Corssmit EP (2013) Carotid body tumors are not associated with an increased risk for sleep-disordered breathing. Sleep Breath van Hulsteijn LT, van Duinen N, Verbist BM, Jansen JC, van der Klaauw AA, Smit JW, Corssmit EP (2013) Effects of octreotide therapy in progressive head and neck paragangliomas: Case series. Head Neck 35:E van Hulsteijn LT, den Dulk AC, Hes FJ, Bayley JP, Jansen JC, Corssmit EP (2013) No difference in phenotype of the main Dutch SDHD founder mutations. Clin Endocrinol (Oxf) doi: /cen van Hulsteijn LT, Louisse A, Havekes B, Kaptein AA, Jansen J, Hes FJ, Smit JW, Corssmit EP (2013) Quality of life is decreased in patients with paragangliomas. Eur J Endocrinol 168: Dijkhuizen A, van Hulsteijn LT, Bonsing B, Corssmit EP, Ramautar SR, Aarts LP, Vuyk J (2013) Hypertensive crisis during adrenalectomy in a patient with pheochromocytoma and a HOCM with SAM. Hormones (Athens) 12:472-4 van Hulsteijn LT, Corssmit EP, Coremans IE, Smit JW, Jansen JC, Dekkers OM (2013) Regression and local control rates after radiotherapy for jugulotympanic paragangliomas: Systematic review and meta-analysis. Radiother Oncol 106:

5 van Hulsteijn LT, Dekkers OM, Hes FJ, Smit JW, Corssmit EP (2012) Risk of malignant paraganglioma in SDHB-mutation and SDHD-mutation carriers: a systematic review and meta-analysis. J Med Genet 49: van Hulsteijn LT, Corssmit EP, van der Hiel B, Smit JW, Stokkel MP (2012) Is there a role for radioguided surgery with iodine-labeled metaiodobenzylguanidine in resection of neuroendocrine tumors? Clin Nucl Med 37: van Hulsteijn LT, van der Hiel B, Smit JW, Stokkel MP, Corssmit EP (2012) "Intraoperative detection of ganglioneuromas with 123I-MIBG." Clin Nucl Med 37: van Hulsteijn LT, van Duinen N, Romijn JA, Smit JW, Corssmit EP (2012) Urinary 5- HIAA excretion is not increased in patients with head and neck paragangliomas. Int J Biol Markers 27:e Pieterman CR, van Hulsteijn LT, den Heijer M, van der Luijt RB, Hermus AR, Borel Rinkes IH, Vriens MR, Valk GD; DutchMEN1 Study Group (2012) Primary hyperparathyroidism in MEN1 patients: a cohort study with long term follow-up on preferred surgical procedure and the relation with genotype. Ann Surg 255: Kosack CS, Page A, van Hulsteijn LT, Lentjes EG (2012) TSH-CHECK-1 Test: diagnostic accuracy and potential application to initiating treatment for hypothyroidism in patients on anti-tuberculosis drugs. PLoS One 7:e den Boer TA, Geurts M, van Hulsteijn LT, Mubarak A, Slingerland J, Zwart B, van der Heijden GJ, Blokhuis TJ (2011) "The value of clinical examination in diagnosing pelvic fractures in blunt trauma patients: a brief review." Eur J Trauma Emerg Surg 37:

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