Cover Page. Author: Netten, Anouk Title: The link between hearing loss, language, and social functioning in childhood Issue Date:

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1 Cover Page The handle holds various files of this Leiden University dissertation Author: Netten, Anouk Title: The link between hearing loss, language, and social functioning in childhood Issue Date:

2 ABBREVIATIONS LIST OF CONTRIBUTING AUTHORS LIST OF PUBLICATIONS ACKNOWLEDGEMENTS CURRICULUM VITAE

3 ABBREVIATIONS AN(C)OVA BCD/BAHA CDI CELF CI CONSORT db DECIBEL DHH DHS EAQ ECI EEQ EmQue-CA fmri HA HI LMM LOCF MAR MAN(C)OVA MCAR (M)CDI MHL MI MLU MNAR MNS NH NHS PCHL Analysis of (Co-)Variance Bone Conduction Device or Bone-Anchored Hearing Aid Child Development Inventory Clinical Evaluation of Language Fundamentals Cochlear Implant Consolidated Standards of Reporting Trials Decibel Developmental Evaluation of Children: Impact and Benefits of Early hearing screening strategies Leiden Deaf and Hard of Hearing Distraction Hearing Screening Emotion Awareness Questionnaire Early Childhood Inventory Emotional Expressivity Questionnaire Empathy Questionnaire for Children and Adolescents functional Magnetic Resonance Imaging Hearing Aid Hearing Impaired Linear Mixed Model Last Observation Carried Forward Missing At Random Multivariate Analysis of (Co-)Variance Missing Completely At Random MacArthur-Bates Communicative Development Inventory Moderate Hearing Loss Multiple Imputation Mean Length of Utterance Missing Not At Random Mirror Neuron System Normal Hearing Newborn Hearing Screening Permanent Childhood Hearing Loss 138

4 RDLS SD SDQ SELT SES SPSS STROBE ToM WISC Reynell Developmental Language Scale Standard Deviation Strengths and Difficulties Questionnaire Schlichting Expressive Language Test Socioeconomic Status Statistical Package for the Social Sciences Strengthening the Reporting of Observational Studies in Epidemiology Theory of Mind Wechsler Intelligence Scale for Children A 139

5 LIST OF CONTRIBUTING AUTHORS J.J. Briaire, PhD Department of Otorhinolaryngology and Head & Neck Surgery Prof. F.W. Dekker, MD, PhD Department of Clinical Epidemiology, E. Dirks, MsC Dutch Foundation for the Deaf and Hard of Hearing Child, Amsterdam, The Netherlands Prof. J.H.M. Frijns, MD, PhD Department of Otorhinolaryngology and Head & Neck Surgery, Leiden Institute for Brain and Cognition, The Netherlands Prof. K.D. Gadow, PhD Department of Psychiatry, Stony Brook University, Stony Brook, NY, United States of America L. Ketelaar, PhD Dutch Foundation for the Deaf and Hard of Hearing Child, Amsterdam, The Netherlands S. Konings, MD Department of Otorhinolaryngology and Head & Neck Surgery, A.M.H. Korver, MD, PhD Willem-Alexander Children s Hospital, Department of Social Pediatrics, Prof. A.M. Oudesluys-Murphy, MD, PhD Willem-Alexander Children s Hospital, Department of Social Pediatrics, 140

6 Prof. C. Rieffe, PhD Department of Developmental Psychology, Leiden University, The Netherlands Dutch Foundation for the Deaf and Hard of Hearing Child, Amsterdam, The Netherlands School of Psychology and Human Development, Institute of Education, University College London, London, United Kingdom W. Soede, PhD Department of Otorhinolaryngology and Head & Neck Surgery, S.C.P.M. Theunissen, MD, PhD Department of Otorhinolaryngology and Head & Neck Surgery, A 141

7 LIST OF PUBLICATIONS Netten, A.P., Rieffe, C., Ketelaar, L., Soede, W., Gadow, K.D., & Frijns, J.H.M. (in revision). Terrible twos or early signs of psychopathology? Developmental patterns in early identified preschoolers with CI compared to hearing controls. Netten, A.P., Rieffe, C., Soede, W., Dirks, E., Korver, A.M.H., Konings, S., Briaire, J.J., Oudesluys-Murphy, A.M., Dekker, F.W., Frijns, J.H.M., on behalf of the DECIBEL Collaborative study group. (Accepted for publication in Ear and Hearing). Can you hear what I think? Theory of mind in young children with moderate hearing loss. Snel-Bongers, J., Netten, A.P., Boermans, P.P.B., Rotteveel, L.J., Briaire, J.J., & Frijns, J.H.M. (in revision) Evidence-based inclusion criteria for cochlear implantation in post-lingual deafened patients. Netten, A.P., Dekker, F.W., Rieffe, C., Soede, W., Briaire, J.J., & Frijns, J.H.M. (2017). Missing Data in the Field of Otorhinolaryngology and Head & Neck Surgery: Need for Improvement. Ear and Hearing 38(1):1-6. doi: /AUD Dirks, E., Ketelaar, L., van der Zee, R., Netten, A.P., Frijns, J.H.M., & Rieffe, C. (2016). Concern for others: A study on empathy in toddlers with moderate hearing loss. J Deaf Stud Deaf Educ. Dec 6. doi: /deafed/enw076 Netten, A.P., Rieffe, C., Theunissen, S.C.P.M., Soede, W., Dirks, E., Briaire, J.J., & Frijns, J.H.M. (2016). Baja empatía en (Pre)Adolescentes Sordos e Hipoacúsicos comparados con pares normoyentes. Integración magazine of Federación Asociaciones de Implantados Cocleares de España (78): Netten, A.P., Rieffe, C., Theunissen, S.C.P.M., Soede, W., Dirks, E., Briaire, J.J., & Frijns, J.H.M. (2015). Low empathy in deaf and hard of hearing (pre)adolescents compared to normal hearing controls. PLoS One. 10(4):e doi: /journal.pone Netten, A.P., Rieffe, C., Theunissen, S.C.P.M., Soede, W., Dirks, E., Korver, A.M.H., Konings, S., Oudesluys-Murphy, A.M., Dekker, F.W., Frijns, J.H.M., on behalf of the DECIBEL Collaborative study group. (2015). Early identification: Language skills and social functioning in deaf and hard of hearing preschool children. Intl. J Pediatric. Otolaryn (79): doi: /j.ijporl Rieffe, C., Netten, A.P., Broekhof, E., Veiga, G. (2015). The role of the environment in children s emotion socialization; The case of deaf or hard of hearing (DHH) children. In M. Marschark & H.E.T. Knoors (Eds.), Educating deaf students: Creating a global evidence base. ( ) London: Oxford University Press. 142

8 Theunissen, S.C.P.M., Rieffe, C., Netten, A.P., Briaire, J.J., Soede, W., Schoones, J.W., & Frijns, J.H.M. (2014). Psychopathology and its risk and protective factors in hearingimpaired children and adolescents: a systematic review. JAMA Pediatr. 168(2): doi: /jamapediatrics Theunissen, S.C.P.M., Rieffe, C., Netten, A.P., Briaire, J.J., Soede, W., Kouwenberg, M., & Frijns, J.H.M. (2014). Self-Esteem in Hearing-Impaired Children: The Influence of Communication, Education, and Audiological Characteristics. PLoS One. 9(4):e doi: /journal.pone Rooney, A.G., Netten, A.P., McNamara, S., Erridge, S., Peoples, S., Whittle, I., Hacking, B., & Grant, R. (2013). Assessment of a brain-tumour-specific Patient Concerns Inventory in the neuro-oncology clinic. Support Care Cancer. 22(4): doi: /s A 143

9 DANK! Een proefschrift kan (en wil!) je niet alleen schrijven. Een ieder die een bijdrage geleverd heeft aan dit onderzoek, in welke vorm dan ook, ben ik zeer, zeer dankbaar! Een bijzonder woord van dank gaat uit naar: Prof. dr. ir. Johan Frijns Prof. dr. Carolien Rieffe Dr. ir. Wim Soede Dr. Stephanie Theunissen Dr. ir. Jeroen Briaire Alle kinderen en hun ouders die deel hebben genomen aan de diverse onderzoeken DECIBEL Collaborative study group; in het bijzonder prof. dr. Friedo Dekker, prof. dr. Anne Marie Oudesluys-Murphy, dr. Marleen Korver en drs. Saskia Konings NSDSK; in het bijzonder drs. Evelien Dirks en dr. Lizet Ketelaar Afdeling KNO: AIOS, stafartsen en medewerkers van het audiologisch centrum Onderzoekers van J2-55 en 80: Berdine, Dick, Dirk, Géke, Johan, Margriet en Timo Afdeling Ontwikkelingspsychologie: prof. dr. Eveline Crone, prof. dr. Michiel Westenberg 3B-51 en omgeving: Evelien, Boya, Emmy, Guida, Marieke, Naqi, Neeltje en Senem Studenten Ewa, Suzanne en Wendy Dames 1.1 Vriendinnetjes Lies, Bekker, Malika, Vletter, Bep en FoKus Demtah: Emma, Judith, Lisa en Sanne Paranimfen Rietje en Mo Mijn 2 e familie; van den Burg (-Heijmen!) Rik en Kirsten Mijn ouders Mark, jij bent mijn alles 144

10 A I get by with a little help from my friends.. John Lennon and Paul McCartney 145

11 CURRICULUM VITAE Anouk Paulien Netten 14 augustus 1986, Bathmen Voortgezet Wetenschappelijk Onderwijs Profiel Natuur & Gezondheid, Frans 2 Etty Hillesum Lyceum, Deventer Geneeskunde Universiteit Leiden Arts-assistent niet in opleiding tot specialist (ANIOS) Snijdende Oncologische Groep Daniël den Hoedt kliniek, Erasmus Medisch Centrum, Rotterdam Arts-onderzoeker Afdeling KNO / Ontwikkelingspsychologie Leids Universitair Medisch Centrum / Universiteit Leiden 2016-heden Arts in opleiding tot specialist (AIOS) Afdeling KNO Leids Universitair Medisch Centrum 146