Cover Page. The handle holds various files of this Leiden University dissertation.

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1 Cover Page The handle holds various files of this Leiden University dissertation. Author: Klink, Jeanine Monica Maria van Title: Long-term neurodevelopmental outcome after fetal therapy Issue Date:

2 PART VI APPENDICES PUBLICATIONS CURRICULUM VITAE DANK LIST OF ABBREVIATIONS

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4 Publications 1. Neurodevelopmental outcome at 2 years in twin-twin transfusion syndrome survivors randomized for the Solomon trial. van Klink JM, Slaghekke F, Balestriero M, Scelsa B, Introvini P, Rustico M, Middeldorp JM, Oepkes D, Lopriore E. Am J of Obstet Gynecol. Accepted Aug doi: /j.ajog [Epub ahead of print] 2. Health-related quality of life and behavioral functioning after intrauterine transfusion for fetal hemolytic disease. van Klink JM, Lindenburg, ITM, Inklaar, MJ, Verduin E, Koopman HM, van Kamp IL, Schonewille H, Oepkes, D, Lopriore E. on behalf of the LOTUS study group. J Pediatr. Accepted Sept doi: /j.jpeds [Epub ahead of print] 3. Long-term neurodevelopmental outcome after selective feticide in monochorionic pregnancies. van Klink JM, Koopman HM, Middeldorp JM, Klumper FJ, Rijken M, Oepkes D, Lopriore E. BJOG Oct;122(11): doi: / Immunoglobulins in Neonates with Rhesus Hemolytic Disease of the Fetus and Newborn: Long- Term Outcome in a Randomized Trial. van Klink JM, van Veen SJ, Smits-Wintjens VE, Lindenburg IT, Rijken M, Oepkes D, Lopriore E. Fetal Diagn Ther. Accepted Jul [Epub ahead of print] 5. Single fetal demise in monochorionic pregnancies: incidence and patterns of cerebral injury. van Klink JM, van Steenis A, Steggerda SJ, Genova L, Sueters M, Oepkes D, Lopriore E. Ultrasound Obstet Gynecol Mar;45(3): doi: /uog Neurodevelopmental outcome in twin anemia-polycythemia sequence after laser surgery for twin-twin transfusion syndrome. van Klink JM, Slaghekke F, Koopman HM, Middeldorp JM, Oepkes D, Lopriore E. Ultrasound Obstet Gynecol Sep;44(3): doi: / uog Improvement in neurodevelopmental outcome in survivors of twin-twin transfusion syndrome treated with laser surgery. van Klink JM, Koopman HM, van Zwet EW, Middeldorp JM, Walther FJ, Oepkes D, Lopriore E. Am J Obstet Gynecol Jun;210(6):540.e1-7. doi: /j. ajog Cerebral injury in monochorionic twins with selective intrauterine growth restriction: a systematic review. Inklaar MJ, van Klink JM, Stolk TT, van Zwet EW, Oepkes D, Lopriore E. Prenat Diagn Mar;34(3): doi: /pd Long-term neurodevelopmental and cardiovascular outcome after intrauterine transfusions for fetal anaemia: a review. Lindenburg IT, van Klink JM, Smits-Wintjens VE, van Kamp IL, Oepkes D, Lopriore E. Prenat Diagn Sep;33(9): doi: /pd Perinatal outcome after selective feticide in monochorionic twin pregnancies. van den Bos EM, van Klink JM, Middeldorp JM, Klumper FJ, Oepkes D, Lopriore E. Ultrasound Obstet Gynecol Jun;41(6): doi: /uog Cerebral injury and neurodevelopmental outcome in twin-twin transfusion syndrome. van Klink JM, Kooman HM, Steggerda SJ, Oepkes D, Rijken M, Lopriore E. Current Obstetrics & Gynecology Reports Dec;2(4): Twin-to-Twin Transfusion Syndrome. Skupski DW. Book chapter: Neonatal and pediatric outcomes. Lopriore E, van Klink JM, Oepkes D Jp Medical Ltd. 13. Cerebral injury and neurodevelopmental impairment after amnioreduction versus laser surgery in twin-twin transfusion syndrome: a systematic review and meta-analysis. van Klink JM, Koopman HM, van Zwet EW, Oepkes D, Walther FJ, Lopriore E. Fetal Diagn Ther Aug;33(2):81-9. doi: / Intrauterine transfusion for parvovirus B19 infection: long-term neurodevelopmental outcome. De Jong EP, Lindenburg IT, van Klink JM, Oepkes D, van Kamp IL, Walther FJ, Lopriore E. Am J Obstet Gynecol Mar;206(3):204.e1-5. doi: /j.ajog Publications 239

5 15. Long-term neurodevelopmental outcome after intrauterine transfusion for hemolytic disease of the fetus/newborn: the LOTUS study. Lindenburg IT, Smits-Wintjens VE, van Klink JM, Verduin E, van Kamp IL, Walther FJ, Schonewille H, Doxiadis II, Kanhai HH, van Lith JM, van Zwet EW, Oepkes D, Brand A, Lopriore E; LOTUS study group. Am J Obstet Gynecol Feb;206(2):141. e1-8. doi: /j.ajog Long-term neurodevelopmental outcome after intrauterine transfusion for fetal anemia. van Klink JM, Koopman HM, Oepkes D, Walther FJ, Lopriore E. Early Hum Dev Sep;87(9): doi: /j.earlhumdev Long-term neurodevelopmental outcome in monochorionic twins after fetal therapy. van Klink JM, Koopman HM, Oepkes D, Walther FJ, Lopriore E. Early Hum Dev Sep;87(9): doi: /j.earlhumdev Long-Term follow up after intra-uterine transfusions; the LOTUS study. Verduin EP, Lindenburg IT, Smits-Wintjens VE, van Klink JM, Schonewille H, van Kamp IL, Oepkes D, Walther FJ, Kanhai HH, Doxiadis II, Lopriore E, Brand A. BMC Pregnancy Childbirth Dec 1;10:77. doi: / Child and parental adaptation to pediatric stem cell transplantation. Vrijmoet-Wiersma CM, Kolk AM, Grootenhuis MA, Spek EM, van Klink JM, Egeler RM, Bredius RG, Koopman HM. Support Care Cancer Jun;17(6): doi: /s Assessment of parental psychological stress in pediatric cancer: a review. Vrijmoet-Wiersma CM, van Klink JM, Kolk AM, Koopman HM, Ball LM, Maarten Egeler R. J Pediatr Psychol Aug;33(7): doi: /jpepsy/jsn Part VI

6 Curriculum Vitae Jeanine Monica Maria van Klink Geboren op 19 oktober 1982, gemeente Alkemade Gymnasium, Bonaventuracollege, Leiden Studie Klinische- en ontwikkelingspsychologie, Universiteit van Amsterdam, Amsterdam Wetenschappelijk onderzoek en scriptie, Kindergeneeskunde, Leids Universitair Medisch Centrum Klinische stage Medische Psychologie, afdeling Kind en Jeugd, Slotervaartziekenhuis, Amsterdam 2007 Begeleider, Logeerhuis voor kinderen en jongvolwassenen met een verstandelijke beperking, Gemiva-SVG groep, Leiden Psycholoog, Sociale Zaken en Werkgelegenheidsprojecten, Den Haag Psycholoog, onderzoeker (LOTUS study), afdelingen Neonatologie en Verloskunde, Leids Universitair Medisch Centrum Promotie onderzoek (Follow-up foetale therapie), afdelingen Neonatologie en Verloskunde, Leids Universitair Medisch Centrum Curriculum Vitae 241

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8 Veel dank aan: Alle families, ouders en kinderen die hebben deelgenomen aan het follow-up onderzoek Enrico Lopriore Dick Oepkes Hendrik Koopman Prof. Dr. Frans Walther Leden promotie- en oppositiecommissie; Prof. Dr. Anne DeBeer, Dr. Edward Kelly, Prof. Dr. Edmond Rings, Prof. Dr. Jan van Lith, Dr. Monique Rijken Het gehele foetaal behandelteam; in het bijzonder Frans Klumper, Annemieke Middeldorp, Monique Haak en Jennie Verdoes Clara en Marjolein Ivanka en Gladys Wendy en Inge Psychologen Curium-LUMC; in het bijzonder Renske, Angelique, Sharon en Marieke Mede-onderzoekers Kindergeneeskunde en Verloskunde Staf Neonatologie; in het bijzonder Vivianne Smits-Wintjens en Ruben Witlox Masterstudenten Psychologie, Pedagogiek en Geneeskunde; in het bijzonder Trudy Kruithof Mijn fantastische paranimfen: Suzanne Peeters en Femke Slaghekke Lieve vrienden en vriendinnen; in het bijzonder Sungi, Nikki, Ginger, Nieke, Debby, Rommert, Pjotr en Linda, Annemarie en Robin, Irene Lindenburg Mijn lieve familie en schoonfamilie; Papa en mama, Dennis en Mandy, Michel en Tanja, Susanne en Eric Violet en Fredt, Matthijs en Tissie, oma Riet en oma Jojo Mijn allerliefsten: Seth en Fiene Veel dank aan 243

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10 List of abbreviations BSID CBCL CP FD GA Hb HRQOL IUT IVH IVIg LOTUS LUMC MC MCA-PSV NND NDI PVL siugr SOLOMON SDQ TAPS TACQOL TAAQOL TOP TOPS TTTS WPPSI WISC Bayley Scales of Infant and Toddler Development Child Behavioral Checklist Cerebral Palsy Fetal Demise Gestational Age Hemoglobin Health Related Quality Of Life Intra Uterine Transfusion Intraventricular Hemorrhage IntraVenous Immunoglobulin LOng-Term follow-up after intra-uterine transfusions Leiden University Medical Center MonoChorionic Middle Cerebral Artery - Peak Systolic Velocity NeoNatal Death NeuroDevelopmental Impairment PeriVentricular Leukomalacia Selective Intra Uterine Growth Restriction Selective Or Laser Of the entire equator in MONochorionic twins Strengths and Difficulties Questionnaire Twin Anemia Polycythemia Sequence TNO-AZL Child Quality of Life Questionnaire TNO-AZL Adult Quality of Life Questionnaire Termination Of Pregnancy Twin Oligo Polyhydramnios Sequence Twin-Twin Transfusion Syndrome Wechsler Preschool and Primary Scale of Intelligence Wechsler Intelligence Scale for Children List of abbreviations 245

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