Publications of PERRIN

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1 Publications of PERRIN All scientific publications are available. If you are interested, please let us know: (make clear which paper you are interested in, and we send you an electronic copy) Abstracts of publications can be found at: Ketelaar M, Gorter JW, Westers P, Hanna S, Verhoef M. Developmental trajectories of mobility and self-care capabilities in young children with cerebral palsy. J Pediatr Apr;164(4): Rooijen M van, Verhoeven L, Smits DW, Dallmeijer AJ, Becher JG, Steenbergen B. Cognitive precursors of arithmetic development in primary school children with cerebral palsy. Res Dev Disabil Apr;35(4): Smits DW, Gorter JW, van Schie PE, Dallmeijer AJ, Ketelaar M; the PERRIN+ study group. How Do Changes in Motor Capacity, Motor Capability, and Motor Performance Relate in Children and Adolescents With Cerebral Palsy? Arch Phys Med Rehabil [Epub ahead of print] Tan SS, Wiegerink DJ, Vos RC, Smits DW, Voorman JM, Twisk JW, Ketelaar M, Roebroeck ME; PERRIN+ study group. Developmental trajectories of social participation in individuals with cerebral palsy: a multicentre longitudinal study. Dev Med Child Neurol Apr;56(4): Tan SS, van Meeteren J, Ketelaar M, Schuengel C, Reinders-Messelink HA, Raat H, Dallmeijer AJ, Roebroeck ME; PERRIN+ study group. Long-term trajectories of health-related quality of life in individuals with cerebral palsy: a multi-center longitudinal study. Arch Phys Med Rehabil [Epub ahead of print] Vos RC1, Dallmeijer AJ, Verhoef M, Van Schie PE, Voorman JM, Wiegerink DJ, Geytenbeek JJ, Roebroeck ME, Becher JG; the PERRIN+ Study Group. Developmental trajectories of receptive and expressive communication in children and young adults with cerebral palsy. Dev Med Child Neurol [Epub ahead of print] 1

2 2013 Scientific publications Alsem MW, Ketelaar M, Verhoef M. The course of health-related quality of life of preschool children with cerebral palsy. Disability and Rehabilitation 2013; 35(8): Schie PE van, Siebes RC, Dallmeijer AJ, Schuengel C, Smits DW, Gorter JW, Becher JG. Development of social functioning and communication in school-aged (5-9 years) children with cerebral palsy. Res Dev Disabil Dec;34(12): Smits DW, Gorter JW, Hanna SE, Dallmeijer AJ, Van Eck M, Roebroeck ME, Vos RC, Ketelaar M; on behalf of the PERRIN Plus Study Group. Longitudinal development of gross motor function among Dutch children and young adults with cerebral palsy: an investigation of motor growth curves. Dev Med Child Neurol. 2013; 55(4): Vos RC, Becher JG, Ketelaar M, Smits DW, Voorman JM, Tan SS, Reinders-Messelink HA, Dallmeijer AJ; PERRIN+ Study Group. Developmental trajectories of daily activities in children and adolescents with cerebral palsy. Pediatrics Oct;132(4):e Presentations and abstracts international congresses Ketelaar M. Challenges and opportunities in knowledge translation: Using evidence to improve outcomes. CHARM, Oslo University, 19 Nov Smits DW, Gorter JW, van Schie PEM, Dallmeijer A, Ketelaar M. How do changes in motor capacity and motor performance relate? Oral Presentation European Academy of Childhood Disability 25th Annual Meeting. Newcastle, October Developmental Medicine & Child Neurology 2013; 55(Suppl 2): 24. Products Harmer-Bosgoed MW, Rehorst L, Faber R, Schneider H, Ketelaar M. Filmverslag Richtlijn CP in praktijk. 20 maart

3 2012 Scientific publications Bult MK, Verschuren O, Lindeman E, Jongmans MJ, Westers P, Claassen A, Ketelaar M. Predicting leisure participation of school-aged children with cerebral palsy: longitudinal evidence of child, family and environmental factors. Child: Care, Health, and Development 2012; 39(3): Wiegerink DJ, Stam HJ, Ketelaar M, Cohen-Kettenis PT, Roebroeck ME, The Transition Research Group South West Netherlands. Personal and environmental factors contributing to participation in romantic relationships and sexual activity of young adults with cerebral palsy. Disabil Rehabil. 2012; 34(17): Presentations and abstracts international congresses Rooijen M van, Verhoeven L, Smits DW, Ketelaar M, Becher JG, Steenbergen B. The influence of cognitive factors on the development of artithmetic performance of primary-school children with cerebral palsy. Developmental Medicine & Child Neurology 2012; 54 (Suppl 3): p 10. Oral presentation European Academy of Childhood Disability (EACD), Istanbul, Turkey, 16-19th May Smits DW, Gorter JW, Hanna SE, Dallmeijer AJ, van Eck M, Roebroeck M, Vos RC, Ketelaar M. Longitudinal development of gross motor function in Dutch children and youth with CP: an investigation of motor growth curves for ages 1-24 years. Developmental Medicine & Child Neurology 2012; 54 (Suppl 6): p Oral presentation American Academy for Cerebral Palsy and Developmental Medicine 66th Annual meeting, Toronto, Canada, Sept Smits DW, Vos RC, Tan SS. PERRIN+: the longitudinal development of activities and participation in children and youth with cerebral palsy. Oral presentation, Dutch-ACD, PERRIN+, LEARN2MOVE Symposium - Cerebrale parese: What s new?!, Utrecht, Netherlands, 30 November Smits DW, Vos RC, Tan SS. Lifespan expectations for individuals with cerebral palsy. Nederlands Tijdschrift voor Revalidatiegeneeskunde 2012; 34(5): 244. Congress reader. Innovation: From creation to implementation. Mini symposium (oral presentation). VRA Annual Congress Noordwijkerhout, the Netherlands, 1-2 November Tan SS, Wiegerink D, Ketelaar M, Smits DW, Voorman JM, Vos RC, Roebroeck ME. Developmental trajectories of social participation in individuals with cerebral palsy aged Proceedings of the 4th International Cerebral Palsy Conference, pp Oral Presentation. Pisa, Italy, October Tan SS, Dallmeijer AJ, Ketelaar M. Lifespan expectations for individuals with cerebral palsy. Proceedings of the 4th International Cerebral Palsy Conference, p 74. Instructional Course. Pisa, Italy, October Vos RC, Becher JG, Ketelaar M, Smits DW, Voorman J, Roebroeck M, Reinders-Messelink H, Lindeman E, Dallmeijer A. Developmental trajectory of performance of daily and motor activities in individuals with cerebral palsy: the Dutch PERRIN+-study. Developmental Medicine & Child Neurology 2012; 54 (Suppl 6): p Poster presentation American Academy for Cerebral Palsy and Developmental Medicine 66th Annual meeting, Toronto, Canada, Sept

4 2011 Scientific publications Rooijen M van, Verhoeven L, Smits DW, Ketelaar M, Becher JG, Steenbergen B. Arithmetic performance of children with cerebral palsy: The influence of cognitive and motor factors. Research in Developmental Disabilities 2011;33: Smits DW, Ketelaar M, Gorter JW, van Schie P, Dallmeijer A, Jongmans M, Lindeman E. Development of daily activities in school-age children with cerebral palsy. Research in Developmental Disabilities 2011;32: Smits DW, Ketelaar M, Gorter JW, van Schie P, Becher JG, Lindeman E, Jongmans M. Development of non-verbal intellectual capacity school-age children with cerebral palsy. Journal of Intellectual Disability Research 2011; 55: Wiegerink DJHG, Roebroeck ME, Bender J, Stam HJ, Cohen-Kettenis PT. Transition Research Group Southwest Netherlands. Sexuality of young adults with cerebral palsy: experienced limitations and needs. Sexuality and Disability 2011;29(2): PhD Theses Nieuwenhuijsen C. Adults with Cerebral Palsy. Studies on physical activity, fitness and experienced problems. PhD Thesis Erasmus MC, University Medical Centre, 2011, Rotterdam. Smits DW. Daily activities of school-age children with cerebral palsy: development and learning. PhDthesis University Medical Center Utrecht, 2011, Utrecht (Chapters in) Books Wiegerink DJHG. Kinderrevalidatie: Blik op wetenschap. In: Post M et al (Red). Revalidatiepsychologie: Mensen leren leven met...; Hoofdstuk: Kinderrevalidatie: Aandacht voor ouders en kinderen met diverse problemen. Nederlands Instituut van Psychologen (NIP), sectie Revalidatie, Utrecht, Professional publications Smits DW. Ontwikkeling van dagelijkse vaardigheden bij kinderen met cerebrale parese. [Interview] BOSK Magazine 2011; 1: 35. Smits DW. Daily activities of school-age children with cerebral palsy: development and learning. Nederlands Tijdschrift voor Revalidatiegeneeskunde 2011; feb: Wiegerink DJHG, Roebroeck ME, Stam HJ, Cohen-Kettenis PT. Relatievorming en seksuele ontwikkeling bij jongvolwassenen met cerebrale parese. Tijdschrift voor Seksuologie 2011; 35: Wiegerink DJHG. Romantic relationships and sexual experiences of adolescents and Young adults with cerebral palsy. Ned. Tijdschrift voor Revalidatiegeneeskunde 2011; 1: Wiegerink DJHG. Ook dat nog...praten over seks. NIP Nieuwsbrief Sectie Revalidatie 2011; 26(62): Presentations and abstracts international congresses Harmer-Bosgoed M, Willems M, Berdenis van Berlekom S, Ketelaar M. Knowledge Brokers Successful in Implementation. 8 Knowledge brokers in 1 network achieve more than 200 professionals alone! Posterpresentatie International Forum on Quality and Safety in Health Care. Amsterdam, 6 april Ketelaar M, Gorter JW, Westers P, Hanna SE, Verhoef M. Development of mobility capability in young children with cerebral palsy. Poster presentation European Academy of Childhood Disability (EACD), Rome, Italy, 9-11 June

5 Smits DW, Ketelaar M, Gorter JW, Van Schie PEM, Dallmeijer AJ, Jongmans MJ, Lindeman E. Selfcare activities of school-age children with cerebral palsy: development and determinants. Presentation (free paper) American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Las Vegas, Nevada, USA, October Wiegerink D, Linroth R, Labhard S. Let s talk about sex. Instructional course American Academy of Cerebral palsy and developmental Disorders (AACPDM), Las Vegas, Nevada, October

6 2010 Scientific publications Alsem MW, Verhoef M, Buis LI, Ketelaar M. De gezondheidsgerelateerde kwaliteit van leven van kinderen met cerebrale parese op de leeftijd van 2,5 jaar. Tijdschrift voor Kindergeneeskunde 2010; 78(1): Eck M van, Dallmeijer AJ, van Lith IS, Voorman JM, Becher JG. Manual ability and its relationship with daily activities in adolescents with cerebral palsy. Journal of Rehabilitation Medicine 2010; 42: Janssen CGC, Voorman JM, Becher JG, Dallmeijer AJ, Schuengel C. Course of health-related quality of life in 9-16-year-old children with cerebral palsy: Associations with gross motor abilities and mental health. Disability and Rehabilitation 2010;32(4): Ketelaar M, Wassenberg-Severijnen J. Developments in measuring functional activities: Where do we go with the PEDI-CAT? Physical and Occupational Therapy in Pediatrics 2010; 30(3): Meester-Delver A, Beelen A, van Eck M, Voorman J, Dallmeijer A, Nollet F, Becher JG. Construct validity of the Capacity Profile in adolescents with cerebral palsy. Clinical Rehabilitation 2010;24(3): Meeteren J van, Nieuwenhuijsen C, de Grund A, Stam HJ, Roebroeck ME, the Transition Research Group South West Netherlands. Using the Manual Ability Classification System (MACS) in young adults with cerebral palsy and normal intelligence. Disability and Rehabilitation 2010; 32(23): Rentinck IC, Ketelaar M, Schuengel C, Stolk J, Lindeman E, Jongmans MJ, Gorter JW. Short-term changes in parents' resolution regarding their young child's diagnosis of cerebral palsy. Child: Care, Health & Development 2010; 36: Sipal RF, Schuengel C, Voorman JM, Van Eck M, Becher JG. Course of behaviour problems of children with cerebral palsy: the role of parental stress and support. Child: Care, Health & Development 2010 Jan;36(1): Smits DW, van Groenestijn AC, Ketelaar M, Scholtes VA, Becher JG, Gorter JW. Selective motor control of the lower extremities in children with cerebral palsy: Inter-rater reliability of two tests. Developmental Neurorehabilitation 2010;13(4): Smits DW, Gorter JW, Ketelaar M, VAN Schie PE, Dallmeijer AJ, Lindeman E, Jongmans MJ. Relationship between gross motor capacity and daily-life mobility in children with cerebral palsy. Developmental Medicine and Child Neurology 2010; 52: e60-e66. Voorman JM, Dallmeijer AJ, van Eck M, Schuengel C, Becher JG. Course of social functioning and communication in children with cerebral palsy: associations with disease characteristics, personal and environmental factors. Developmental Medicine and Child Neurology 2010;52(5): Wiegerink DJHG, Roebroeck ME, van der Slot WMA, Stam HJ, Cohen-Kettenis PT and the Transition Research Group South West Netherlands. Importance of peers and dating in development of romantic relationships and sexual career among young adults with cerebral palsy. Developmental Medicine and Child Neurology 2010;52: Wiegerink DJHG, Stam HJ, Gorter JW, Cohen-Kettenis PT, Roebroeck ME and the Transition Research Group South West Netherlands. Development of romantic relationships and sexual activity in young adults with cerebral palsy: a longitudinal study. Archives of Physical Medicine and Rehabilitation 2010;91(9): Zwier JN, van Schie PEM, Becher JG, Smits DW, Gorter JW, Dallmeijer AJ. Physical activity in Young children with cerebral palsy. Disability and Rehabilitation 2010;32(18): PhD Thesis Wiegerink DJHG. Romantic relationships and sexual experiences of adolescents and young adults with cerebral palsy. Dissertation Erasmus University Rotterdam, the Netherlands, Professional publications Faber R. Cerebrale parese: een grote groep in de kinderrevalidatie. Revalidatie Magazine 2010; 16(2):

7 Harmer-Bosgoed M, Willems M, Van der Sanden K, Ketelaar M. Knowledge Brokers PERRIN, bruggenbouwer tussen zorg en onderzoek. Revalidata 2010; 32 (158): Smits DW. Ontwikkeling van dagelijkse vaardigheden bij kinderen met een hersenbeschadiging. Persbericht]. BOSK Magazine 2010; 5: 34. Willems M. Bruggenbouwer tussen zorg en onderzoek. Revalidatie Magazine 2010; 16(2): Wiegerink D, Roebroeck M, Stam H, Cohen-Kettenis P. Problemen met seks bij jongvolwassenen met cerebrale parese. Revalidata 2010; 155: Presentations and abstracts international congresses Dallmeijer AJ, Voorman JM, van Eck M, Becher JG. Motor functioning of children with cerebral palsy during transition to adolescence. Developmental Medicine & Child Neurology 2010; 52(Suppl. 4): 8. Presentatie European Academy of Childhood Disability (EACD), Brussels, Belgium, May Hilberink SR, van der Slot WMA, Jedeloo S, van Meeteren J, Wiegerink DJHG, Roebroeck ME. TransitieNet - A national network to implement lifespan care in the Netherlands. Description of network activities and evaluation. Presentation Transitions Conference 5 Bloorview Rehab, Toronto, Canada, June Ketelaar M, Harmer-Bosgoed M, Willems M, Russell D, Rosenbaum P. Moving research evidence into clinical practice: the role of knowledge brokers. Developmental Medicine & Child Neurology 2010; 52(Suppl. 4): 66. Instructional course European Academy of Childhood Disability (EACD), Brussels, Belgium, May Ketelaar M. Knowledge Brokers PERRIN. Presentatie Research-meeting CanChild. 4 februari Ketelaar M. Knowledge Brokers getting knowledge from researchers to practitioners. Presentatie Research-meeting Health Sport Center Beitostolen, Noorwegen. 5 maart Ketelaar M, Harmer-Bosgoed M, Willems M, Verschuren O, Verhoef M. The role of knowledge brokers in the implementation of evidence-based measures in Multidisciplinary teams: an example of the GMFCS and MACS. Developmental Medicine & Child Neurology 2010; 52(Suppl. 5): 58. Presentation American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Washington, USA, Sept Kruijver E, de Grund A, Schipper D, Rijnsent M, van Hoewijk J, Bender J, Breed P, Hilberink S. Friendships, intimate relationships and sexuality a program for adolescents to enhance selfconfidence and social skills. Poster presentation Transitions Conference 5 Bloorview Rehab, Toronto, Canada, June Roebroeck ME, van den Berg-Emobs HJG, Nieuwenhuijsen C, Hilberink SR, van der Slot WMA, van Meeteren J, Stam H, the Transition Research Group South West Netherlands and the Transition Network. Innovating transition and lifespan care for people with cerebral palsy.. Developmental Medicine & Child Neurology 2010; 52 (Suppl. 4):74. Presentation European Academy of Childhood Disability (EACD), Brussels, Belgium, May Russell DJ, Ketelaar M, Gorter JW, Darrah J, Roxborough L, Cameron D. Knowledge Brokering: A strategy to help move measures into practice. Book of Abstracts, p Instructional course American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Washington, USA, Sept Russell DJ, Rivard LM, Roxborough L, Ketelaar M, Bartlett DJ, Rosenbaum PL. Encouraging the uptake of evidence-based measures among pediatric physical therapists: knowledge broker activities and experiences. Developmental Medicine & Child Neurology 2010; 52(Suppl. 5): 83. Posterpresentation American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Washington, USA, Sept Voorman JM, van Eck M, Dallmeijer AJ, Becher JG. Motor functioning of children with cerebral palsy during transition to adolescence. Developmental Medicine & Child Neurology 2010; 52(Suppl. 4): 8. Presentation European Academy of Childhood Disability (EACD), Brussels, Belgium, May Wiegerink DJHG, Roebroeck ME, Stam HJ, Cohen-Kettenis PT and the Transition research Group South West Netherlands. Importance of peers and dating in development of romantic relationships and sexual activity of young adults with cerebral palsy. Developmental Medicine & Child Neurology 7

8 2010; 52 (Suppl. 4):56. Presentation European Academy of Childhood Disability (EACD), Brussels, Belgium, May Wiegerink D, Cohen-Kettenis P, Stam HJ, Roebroeck M. Sexualityof young adults with cerebral palsy:experienced limitations end needs Developmental Medicine & Child Neurology 2010; 52(Suppl. 5): 22. Presentation American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Washington, USA, Sept

9 2009 Scientific publications Donkervoort M, Wiegerink DJHG, van Meeteren J, Stam HJ, Roebroeck ME. Transition to adulthood: validation of the Rotterdam Transition Profile for young adults with cerebral palsy and normal intelligence. Developmental Medicine and Child Neurology 2009; 51: Eck M van, Dallmeijer AJ, Voorman JM, Becher JG. Longitudinal study of motor perfomance and its relation to motor capacity in children with cerebral palsy. Dev Med Child Neurol Apr;51(4): Gorter JW, Ketelaar M, Rosenbaum P, Helders PJ, Palisano R. Use of the GMFCS in infants with CP: the need for reclassification at age 2 years or older. Developmental Medicine and Child Neurology 2009; 51: Gorter JW, Verschuren O, van Riel L, Ketelaar M. The relationship between spasticity in young children (18 months of age) with cerebral palsy and their gross motor function development. BMC Musculoskeletal Disorders 2009; 10:108. Holsbeeke L, Ketelaar M, Schoemaker M, Gorter JW. Capacity, capability, and performance: Different constructs or three of a kind? Archives of Physical Medicine and Rehabilitation 2009; 90: Meester-Delver A, Beelen A, Ketelaar M, Hadders-Algra M, Nollet F, Gorter JW. Construct validity of the Capacity Profile in preschool children with cerebral palsy. Developmental Medicine and Child Neurology 2009; 51: Nieuwenhuijsen C, Donkervoort M, Nieuwstraten W, Stam HJ, Roebroeck ME, the Transition Research Group South West Netherlands. Experienced problems of young adults with cerebral palsy: Targets for rehabilitation care. Archives of Physical Medicine and Rehabilitation 2009; 90: Plasschaert VFP, Ketelaar M, Nijnuis MG, Enkelaar L, Gorter JW. Classification of manual abilities of children with cerebral palsy under 5 years of age: how reliable is the Manual Ability Classification System? Clinical Rehabilitation 2009; 23: Rentinck IC, Ketelaar M, Jongmans MJ, Lindeman E, Gorter JW. Parental reactions following the diagnosis of cerebral palsy in their young child. Journal of Pediatric Psychology 2009; 34: Rentinck IC, Gorter JW, Ketelaar M, Lindeman E, Jongmans MJ. Perceptions of family participation among parents of children with cerebral palsy followed from infancy to toddlerhood. Disability and Rehabilitation 2009; 31(22): Roebroeck ME, Jahnsen R, Carona C, Twyford A, Twyford M, Kent RM, Chamberlain MA. Adult outcomes and lifespan issues for persons with childhood-onset disability. Developmental Medicine and Child Neurology 2009; 51: Schuengel C, Rentinck IC, Stolk J, Voorman JM, Loots GM, Ketelaar M, Gorter JW, Becher JG. Parents' reactions to the diagnosis of cerebral palsy: associations between resolution, age and severity of disability. Child: Care, Health & Development 2009; 35: PhD Theses Rentinck ICM. Parental adaptation in families of young children with cerebral palsy. Dissertation Utrecht University, the Netherlands. Voorman JM. Cerebral palsy and the transition to adolescence. Course of functioning, self-perception and quality of life. Dissertation VU University Medical Center Amsterdam, the Netherlands. (Chapters in) Books Bosgoed MW. Meten van dagelijkse activiteiten met de PEDI-NL. In: Leerboek VRA: Klinimetrie bij kinderen en jongeren met een beperking 2009, p Nijmegen: PAOG/VRA. Ketelaar M. Een meetinstrument kiezen: Waar let ik op? In: Leerboek VRA: Klinimetrie bij kinderen en jongeren met een beperking 2009, p Nijmegen: PAOG/VRA. Professional publications / Vakpublicaties Bosgoed MW. Nieuwe functie: Knowledge Broker. Revalidatie Magazine 2009; 15(1): 6. 9

10 Bosgoed MW, Willems M. Knowledge broker brengt wetenschap naar de praktijk. Op de Hoogte, juni Faber R. Beter begeleiden naar volwassenheid. Revalidatie Magazine 2009; 15(1): Gorter JW, van Tol E, van Schie P, Ketelaar M. De herziene en uitgebreide versie van de Gross Motor Function Classification System (GMFCS-E-R). Revalidata 2009; 31(150): 2-5. Gorter JW, van Tol E, Schie PEM, Ketelaar M. Acht jaar na de introductie van de Gross Motor Function Classification System (GMFCS) in Nederland: een update. Nederlands Tijdschrift voor Kinderfysiotherapie 2009;21(63): Noordstar JJ, Smits DW, Gorter JW. Het zelf-concept bij kinderen met cerebrale parese: een literatuurstudie. Beweegreden 2009; 3: BOSK Magazine (Tijdschrift Oudervereniging) Gorter JW, Ketelaar M. Revalidatieonderzoek bij jonge kinderen met cerebrale parese. BOSK Magazine 2009; nr 4: Ketelaar M, Harmer-Bosgoed MW. Revalidatieonderzoek bij kinderen, adolescenten en jongvolwassenen met cerebrale parese. BOSK Magazine 2009; nr 5: Roebroeck M, Wiegering D, Donkervort M, van Nieuwenhuijsen C, van Meeteren J. Revalidatieonderzoek bij jongvolwassenen met cerebrale parese; Een knip in de zorg. BOSK Magazine 2009, nr 2: 35. Smits DW, van Schie PEM. Revalidatieonderzoek bij kinderen met cerebrale parese; PERRIN CP 5-9. BOSK Magazine 2009; nr 1: 35. Voorman J, van Eck M. PERRIN CP 9-16 jaar: Een onderzoek naar de functionele prognose van kinderen met cerebrale parese in de leeftijd van 9 tot 16 jaar. BOSK Magazine 2009; nr 3: 35. Presentations and abstracts international congresses Eck M van, Voorman J. PERRIN 9-16: Functioning of children with Cerebral Palsy during transition to adolescence. Abstract book, p 24. Presentatie International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november Gorter JW, Ketelaar M, Verhoef M. Development of gross motor function among young children (age months) with cerebral palsy. Developmental Medicine and Child Neurology 2009; 51 (Suppl. 2): Presentatie Third International Cerebral Palsy Conference, Sydney, Australia, February Hilberink SR, Jedeloo S, Floothuis M, van Meeteren J, Verhoef JAC, Roebroeck ME. Lifespan care session (aimed at youth and adults with CP). Workshop International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november Hilberink SR, van der Slot WA, Wiegerink DJHG, Roebroeck ME. Lifespan care session (aimed at professionals). Workshop International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november Ketelaar M. Knowledge Brokers Getting knowledge from researchers to practitioners. Invited lecture Norwegian Conference for Pediatric Physical Therapy. Oslo, Norway, 9-11 March Ketelaar M, Holsbeeke L, Schoemaker M, Gorter JW. Capacity, capability, and performance: different constructs or three of a kind? Developmental Medicine and Child Neurology 2009; 51 (Suppl. 2): 62. Presentatie Third International Cerebral Palsy Conference, Sydney, Australia, February Ketelaar M, Becher JG, Roebroeck M, Willems M. PERRIN: Communication between professionals and researchers. A workshop bridging the gap between research and practice. Revalidata 2009; 31(nr 151): 11. Workshop Jaarcongres VRA. Ermelo, 30 oktober Ketelaar M, Bosgoed M, Willems M. Knowledge Brokers: What are they and how can they help move research evidence into clinical practice? Abstract book, p 36. Workshop International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november Meester-Delver A, Beelen A, Ketelaar M, Hadders-Algra M, Nollet F, Gorter JW. Construct validity of the capacity profile in preschool children with cerebral palsy. Developmental Medicine and Child Neurology 2009; 51 (suppl. 5): 61. Poster American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Scottsdale, USA, September Rentinck ICM, Ketelaar M, Schuengel C, Lindeman E, Jongmans MJ, Gorter JW. Parental reactions following the diagnosis of cerebral palsy in their young child. Abstract book, p 29. Presentatie 10

11 International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november Roebroeck ME and the Transition and lifespan Research Group. The Rotterdam Transition profile in practice. Young adults with cerebral palsy and normal intelligence. Presentation (via audio link), Young people s health special interest group Conference (Royal College of Paediatrics and Child health): Young people with Chronic Conditions. Birmingham UK, 1-2 october Roebroeck M, Donkervoort M, Wiegerink D, Nieuwenhuijsen C, Stam HJ. Adolescents and young adults with cerebral palsy: Do environmental and personal factors contribute to participation in society? Abstract book, p Presentation International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november Roebroeck M, Transition Research Group South West Netherlands. Transition into adulthood and lifespan care for (young) adults with cerebral palsy. Abstract book, p 19. Presentation International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november Russell D, Ketelaar M, Cameron D, Darrah J, Gorter JW, Rosenbaum P, Roxborough L. Knowledge Brokers: What are they and How can they help move cerebral palsy research into clinical practice. Conference Proceedings, p Presentatie Third International Cerebral Palsy Conference, Sydney, Australia, February Schie PEM van, Zwier N, Becher J, Smits DW, Gorter JW, Dallmeijer A. Physical activities in 5 and 7 years old children with cerebral palsy. Conference Proceedings, p Presentatie Third International Cerebral Palsy Conference, Sydney, Australia, February Schuengel, C. Parents resolution of diagnosis. Paper presented at the International Symposium on A global status quo on cerebral palsy, with a view to the future, Utrecht, 5-7 november Schuengel, C. Veerkracht en kwetsbaarheid bij ouders van kinderen met aandoeningen en beperkingen. Plenaire lezing op het eerste symposium Pediatrische Psychologie, Amsterdam. 4 juni Smits DW, Gorter JW, Ketelaar M, van Schie PEM, Dallmeijer A, Lindeman E, Jongmans M. The relationship between gross motor capacity and performance of daily life mobility in children with cerebral palsy at primary school age. Conference Proceedings, p. 74. Presentatie Third International Cerebral Palsy Conference, Sydney, Australia, February Smits DW, Gorter JW, Ketelaar M, van Schie PEM, Dallmeijer AJ, Lindeman E, Jongmans MJ. Relationship between gross motor capacity and daily-life mobility in children with cerebral palsy. Abstract book, p Presentatie International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november Sobus K, Maxwell J, Healy H, Ruck-Gibis J, Roebroeck M, Wiegerink D, Linroth R. Comparing and contrasting transition service models from the United States, Canada and the Netherlands. Breakfast session American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Scottsdale, USA, September Verhoef M, Ketelaar M, Siebes R, Rentinck I, Gorter JW. A longitudinal study of parents perceptions of family-centeredness of services for their Young child with cerebral palsy. Developmental Medicine and Child Neurology 2009; 51 (suppl. 5): 60. Poster American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Scottsdale, USA, September Weerd GH van de, Smits DW, Gorter JW, Ketelaar M. Cognitive capacity in 6- and 7-year-old children with cerebral palsy. Abstract book, p 47. Poster International Symposium A global status quo on cerebral palsy, with a view to the future. Utrecht, 5-7 november Wiegerink D, Roebroeck M, Stam H, Cohen-Kettenis P. Importance of peers and dating in development of romantic relationships among Young adults with cerebral palsy. Developmental Medicine and Child Neurology 2009; 51 (suppl. 5): 11. Presentation American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Scottsdale, USA, September

12 2008 Scientific publications Eck M van, Dallmeijer AJ, Voorman JM, Becher JG. Skeletal maturation in children with cerebral palsy and its relationship with motor functioning. Dev Med Child Neurol Jul; 50(7): Eck M van, Dallmeijer AJ, Beckerman H, van den Hoven PA, Voorman JM, Becher JG. Physical activity level and related factors in adolescents with cerebral palsy. Pediatr Exerc Sci Feb ; 20(1) : Enkelaar L, Ketelaar M, Gorter JW. Association between motor and mental functioning in toddlers with cerebral palsy. Dev Neurorehabil 2008; 11: Ketelaar M, Russell DJ, Gorter JW. The challenge of moving evidence-based measures into clinical practice: Lessons in knowledge translation. PhysOcc Ther in Ped 2008; 8: Meeteren J van, Roebroeck, ME, Celen E, Donkervoort M, Stam HJ, Transition Research Group South West Netherlands. Functional activities of the upper extremity of young adults with cerebral palsy: a limiting factor for participation? Disabil Rehabil 2008:30(5): Nieuwenhuijsen C, Y van de Laar, M Donkervoort, W Nieuwstraten, ME Roebroeck, HJ Stam. Unmet needs and health care utilization in young adults with cerebral palsy. Disabil Rehabil 2008; 30(17): Nijhuis BJG; Reinders-Messelink HA; Blécourt ACE de; Calame EHM; Boonstra AM; Groothoff JW; Nakken H; Postema K. Goal setting in Dutch paediatric rehabilitation. Are the needs and principal problems of children with cerebral palsy integrated into their rehabilitation goals. Clin Rehabil 2008; 22: Nijhuis BJG; Reinders-Messelink HA; Blécourt ACE de; Ties JG; Boonstra AM; Groothoff JW; Nakken H; Postema K. Needs, problems and rehabilitation goals of young children with cerebral palsy as formulated in the Rehabilitation Activities Profile for Children. J Rehabil Medicine 2008; 40: Siebes RC, Nijhuis BJ, Boonstra AM, Ketelaar M, Wijnroks L, Reinders-Messelink HA, Postema K, Vermeer A. A family-specific use of the Measure of Processes of Care for Service Providers (MPOC-SP). Clinical Rehabilitation 2008;22: Wiegerink DJHG, Roebroeck ME, Donkervoort M, Cohen-Kettenis PT, Stam HJ. Social, intimate and sexual relationships of adolescents and young adults with cerebral palsy compared with healthy age mates. J Rehabil Med 2008: 40: (Chapters in) Books Wiegerink DJHG, Gorter JW. Cerebrale Parese. In: WL Gianotten, MJ Meihuizen-de Regt, N van Son- Schoones (Red), Seksualiteit bij ziekte en lichamelijke beperking. Assen, Van Gorcum; p Professional publications / Vakpublicaties Gorter JW, Nijhuis B. Interview. Noodzaak voor een gemeenschappelijke taal. In: M.Evenblij. Voorspellen van herstellen. Uitkomsten van revalidatieonderzoek. Den Haag, ZonMw Stiumlerinsgprogramma Revalidatieonderzoek, 2008; p Ketelaar M, Lindeman E. Interview. Revalidatie van kinderen. In: M.Evenblij. Voorspellen van herstellen. Uitkomsten van revalidatieonderzoek. Den Haag, ZonMw Stiumlerinsgprogramma Revalidatieonderzoek, 2008; p Ketelaar M, Lindeman E. Interview. Revalidatietherapeut als coach. In: M.Evenblij. Voorspellen van herstellen. Uitkomsten van revalidatieonderzoek. Den Haag, ZonMw Stiumlerinsgprogramma Revalidatieonderzoek, 2008; p Nijhuis BJG, ICF-CY één taal voor de kinderrevalidatie. Revalidatie Magazine 14(3), September Nijhuis BJG, Samenwerken in de Kinderrevalidatie; gezinsgericht en doelgericht. Revalidata 30 (145), oktober Roebroeck ME. Interview. Adolescenten in transitie. Gevaar van discontinuïteit van zorg. In: M.Evenblij. Voorspellen van herstellen. Uitkomsten van revalidatieonderzoek. Den Haag, ZonMw Stiumlerinsgprogramma Revalidatieonderzoek, 2008; p

13 BOSK Magazine (Tijdschrift Oudervereniging) Gorter JW, Ketelaar M. Revalidatieonderzoek bij jonge kinderen met cerebrale parese. BOSK Magazine 2008(4): Nijhuis B. Revalidatieonderzoek bij kinderen met cerebrale parese: ProCP. BOSK Magazine 2008(1). Roebroeck ME. Revalidatieonderzoek bij jongvolwassenen met cerebrale parese. Het CP Transitieonderzoek Zuid-West Nederland (PERRIN CP16-24) aan het woord. BOSK Magazine 2008(2): 23. Voorman J, van Eck M. Revalidatieonderzoek bij kinderen met cerebrale parese: CP BOSK Magazine 2008(3): 32. Presentations and abstracts international congresses Gorter JW, Verschuren O, van Riel L, Ketelaar M. The influence of spasticity on the development of gross motor function in young children with cerebral palsy. Developmental Medicine and Child Neurology 2008; 50 (Suppl. 4): Presentatie AACPDM, september Hilberink SR, van der Slot W, van Meeteren J, Roebroeck ME. Specialised rehabilitation care for young adults with a disability. Presentation. Transitions Conference 4: Participation, Toronto, May Hilberink SR, Roebroeck ME, Verheijden JMA, Jalink L, Nieuwstraten W, Stam HJ. Health issues in adults with cerebral palsy: Towards a lifespan perspective. Poster. Transitions Conference 4: Participation, Toronto, Meeteren J van, Selles RW, van Rijn R, Celen E, Donkervoort M, Stam HJ, Roebroeck ME. Function of the upper extremity in young adults with cerebral palsy: Interrelationships and importance for participation. Presentation European Congress of Physical and Rehabilitation Medicine, Brugge. J Rehabil Med 2008; 47: Nieuwenhuijsen C, Donkervoort M, Stam HJ, Roebroeck M. Experienced problems of young adults with cerebral palsy: targets for rehabilitation care? Dev Med Child Neurol 2008; 50 (Suppl. 4): 58. Scientific Poster AACPDM, september Rentinck ICM, Ketelaar M, Jongmans MJ, Lindeman E, Gorter JW. Parental reactions following the diagnosis of cerebral palsy in their young child. Clinical Rehabilitation 2008;22: Presentatie VRA-Colloquium. Utrecht, 11 april Roebroeck ME, van den Berg-Emons HJG, Stam HJ, Transition Research Group. A lifespan perspective on functioning and health of adults with childhood onset disability. Presentation European Congress of Physical and Rehabilitation Medicine, Brugge. J Rehabil Med, 2008; 47: 137. Roebroeck ME, Donkervoort M, Wiegerink DJHG, Meeteren J van, Stam HJ and the Transition Research Group South West Netherlands.The Rotterdam Transition profile; A tool to summarize the transition process. Presentation. Transitions Pre-Conference Bloorview Kids Rehab, Toronto, May Roebroeck ME, on behalf of the Transition Research Group. Participation and health issues of young adults with a childhood onset disabling condition. Presentation. Transitions Conference 4: Participation, Toronto, May Roebroeck ME, van der Slot W, van Meeteren J, Kent RM, Frank AO, van Mechelen MC, Miedema HS, Hilberink SR, Stam HJ, Transition Research Group Suoth-West Netherlands. Transition from childhood to adulthodd: who cares? Workshop. 3 rd Dutch-UK Rehabilitation meeting: Ageing. Ermelo, october Voorman J, Dallmeijer A, Eck M, Becher J. Prospective longitudinal study of social function and communication in children with cerebral palsy aged 9 to 16 years. Presentatie European Academy of Childhood Disability (EACD). Zagreb: 4-7 Juni Dev Med Child Neurol 2008; 50 (Suppl.114):28. Wiegerink DW, Roebroeck ME, Donkervoort M, Cohen-Kettenis P, Stam HJ. Social and sexual relationships of adolescents and young adults with cerebral palsy in The Netherlands. Dev Med Child Neurol 2008; 50 (Suppl. 4): 39. Presentatie AACPDM, september

14 2007 Scientific publications Donkervoort M, Roebroeck ME, Wiegerink DJHG, Heijden-Maessen H van der, Stam HJ, & the Transition research group south west netherlands. Determinants of functioning of adolescents and young adults with cerebral palsy. Disabil Rehabil 2007; 29: Engelen V, Ketelaar M, Gorter JW. Selecting the appropriate outcome in pediatric physical therapy; how individual treatment goals of children with cerebral palsy are reflected in GMFM-88 and PEDI. Journal of Rehabilitation Medicine 2007; 39: Gorter JW, Becher J, Oosterom I. To stretch or not to stretch in children with cerebral palsy. Dev Med Child Neurol. 2007; 49(10): (letter to the editor) Hilberink SR, Roebroeck ME, Nieuwstraten W, Jalink L, Verheijden JMA, Stam HJ.Health issues in young adults with cerebral palsy: Towards a life span perspective. J Rehabil Med 2007; 39: Meeteren J van, R van Rijn, RW Selles, ME Roebroeck, HJ Stam. Grip strength parameters and functional activities in young adults with hemiplegic cerebral palsy. J Rehabil Med 2007; 39: Nijhuis BJG, Reinders-Messelink HA, Blécourt ACE de, Olijve WG, Groothoff JW, Nakken H, Postema K. A review of salient elements defining team collaboration in paediatric rehabilitation. Clin Rehabil 2007; 21: Nijhuis BJG, Reinders-Messelink HA, Blécourt ACE de, Hitters WMGC, Groothoff JW, Nakken H, Postema K. Family-centered care in family-specific teams. Clinical Rehabilitation 2007;21(7): Nijhuis BJG, Reinders-Messelink HA, Blécourt ACE de, Olijve WG, Haga N, Groothoff JW, Nakken H, Postema K.Towards integrated paediatric services in the Netherlands: a survey of views and policies on collaboration in the care for children with cerebral palsy. Child: Care Health & Development 2007;33(5): Nijhuis BJG. Early use of ICF-CY in: Team Collaboration in Dutch Paediatric Rehabilitation (the PROCP study). Newsletter on the WHOFIC 2007; 5(1): 5-6. Rentinck ICM, Ketelaar M, Jongmans MJ, Gorter JW. Parents of children with cerebral palsy: a review of factors related to the process of adaptation. Child, Care, Health and Development 2007; 33: Siebes RC, Wijnroks L, Ketelaar M, van Schie PEM, Gorter JW, Vermeer A. Parent participation in paediatric rehabilitation treatment centres in the Netherlands: a parents' viewpoint. Child, Care, Health and Development 2007; 33: Siebes RC, Maassen GH, Wijnroks L, Ketelaar M, van Schie PEM, Gorter JW, Vermeer A. Quality of paediatric rehabilitation from the parent perspective: validation of the short Measure of Processes of Care (MPOC-20) in the Netherlands. Clin Rehabil 2007; 21: Siebes RC, Ketelaar M, Gorter JW, Wijnroks L, de Blécourt ACE, Reinders-Messelink HA, van Schie PEM, Vermeer A. Transparency and tuning of rehabilitation care for children with cerebral palsy: A multiple case study in five children with complex needs. Developmental Neurorehabilitation 2007,10: Siebes RC, Wijnroks L, Ketelaar M, van Schie PEM, Vermeer A, Gorter JW. One-year stability of the Measure of Processes of Care. Child: Care, Health & Development 2007; 33: Siebes RC, Wijnroks L, Ketelaar M, van Schie PEM, Vermeer A, Gorter JW. Validation of the Dutch Giving Youth a Voice Questionnaire (GYV-20): A Measure of the client-centredness of rehabilitation services from an adolescent perspective. Disability and Rehabilitation 2007; 29; Slot W van der, Roebroeck ME, Landkroon AP, Terburg M, Berg-Emons HJG, Stam HJ. Everyday physical activity in adults with cerebral palsy. Disabil Rehabil, 2007; 29: Steenbeek D, Ketelaar M, Galama K, Gorter JW. Goal Attainment Scaling in pediatric rehabilitation: A critical; review of the literature. Developmental Medicine and Child Neurology 2007; 49: Voorman JM, Dallmeijer AJ, Knol DL, Lankhorst GJ, Becher JG. Prospective longitudinal study of gross motor function in children with cerebral palsy. Archives of Physical Medicine and Rehabilitation 2007; 88:

15 PhD thesis Nijhuis BJG. Team Collaboration in Dutch Paediatric Rehabilitation. Dissertation University of Groningen, the Netherlands. Professional publications / Vakpublicaties Gorter JW. Het verschil tussen Cerebrale Parese (CP) en Infantiele Encephalopathie (IE). Wetenschapsloket. Nederlands Tijdschrift voor Kinderfysiotherapie 2007; 19 (54): Nieuwenhuijsen C, Donkervoort M, Roebroeck ME, Wiegerink DJHG, Stam HJ. Ervaren problemen en zorggebruik van jongvolwassenen met cerebrale parese. Tijdschrift voor Neuropsychiatrie en Gedragsneurologie 2007, juni, Nijhuis, B. Kinderen met cerebrale parese. Samenwerken in een team van ouders, revalidatiecentrum en school. Revisie 2007, maart, 18. Nijnuis MG, Verhage CH, Nijsse B, Ketelaar M, Gorter JW. De PEDI in het Nederlands. Achtergrondinformatie, relatie met normscores versus de ernst van cerebrale parese en het gebruik van de aanpassingenschaal. Nederlands Tijdschrift voor Ergotherapie 2007; 35(1): Pelgröm I. Het kind beter in beeld. Stand van zaken PERRIN. Revalidatie Magazine 2007; nr 1: Siebes RC, Ketelaar M, Gorter JW, Wijnroks L, de Blécourt ACE, Reinders-Messelink HA, van Schie PEM, Vermeer A. Afstemming van hulpvraag, behandeldoelen en behandeling in de revalidatiezorg voor kinderen met CP. Revalidata 2007; 29(136): BOSK Magazine (Tijdschrift Oudervereniging) Donkervoort M, Revalidatieonderzoek bij kinderen met cerebrale parese. Informatie over het CP Transitieonderzoek Zuid-West Nederland (PERRIN CP16-24). BOSK Magazine 2007; nr.5: 40. Gorter JW, Smits DW, van Schie PEM. PERRIN 5-9: Onderzoek bij schoolgaande kinderen met cerebrale parese. BOSK Magazine 2007; nr 1: 17. Nijhuis BJG. Revalidatieonderzoek bij kinderen met cerebrale parese : ProCP. BOSK Magazine 2007; nr 2: 23. Rentinck ICM, Gorter JW, Ketelaar M. Onderzoek bij jonge kinderen met cerebrale parese: Wat gebeurt er met de ouders? BOSK Magazine 2007; nr 3:23. Voorman J, van Eck M. Revalidatieonderzoek bij kinderen met cerebrale parese: CP BOSK Magazine 2007; nr 4: 23. Presentations and abstracts international congresses Dallmeijer AJ, Voorman JM, Becher JG. Rasch analysis of the Vineland Adaptive Behavior Scales in children with cerebral palsy. Presented at the American Academy of Cerebral Palsy and Developmental Medicine (AACPDM). Vancouver, Canada: okt Dev Med Child Neurol 2007; 49 (S111): 80. Dallmeijer AJ, van Eck M, Roebroeck M, Becher JG. Validity of the Dutch ABILHAND-Kids in adolescents with cerebral palsy. Presented at European Academy of Childhood Disability (EACD). Groningen: Juni Dev Med Child Neurol 2007; 49 (S110): 20. Donkervoort M, Roebroeck ME, Wiegerink DJHG, Stam HJ, Transition Research Group. Youth with cerebral palsy: do environmental and personal factors contribute to restrictions in activities and participation? Presentatie European Academy of Childhood Disability (EACD). Groningen: Juni Dev Med Child Neurol 2007; 49 (Suppl 110):10. Eck M van, AJ Dallmeijer, JM Voorman, JG Becher. Development of skeletal age in children with cerebral palsy. Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: Juni Congresboek 2007: 41. Enkelaar L, Ketelaar M, Gorter JW. Association between motor and mental functioning in toddlers with cerebral palsy. Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: Juni Congresboek 2007: 41. Gorter JW. The place and purpose of different therapies in children with CP is uncertain and controversial: is it clearer for adults? Novartis Invitational Conference. London (UK), 10 mei

16 Hilberink SR, Roebroeck ME, Verheijden JMA, Jalink L, Nieuwstraten W, Stam HJ. Health Issues in Adults with Cerebral Palsy: Towards a life-span perspective. Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: Juni Congresboek 2007: 42. Ketelaar M, Becher JG, Bosgoed MW, Gorter JW, Jongmans M, Reinders-Messelink HA, Roebroeck M, Lindeman E. Paediatric Rehabilitation Research in the Netherlands (PERRIN): from questions in clinical practice to a national multi-disciplinary research programme, and back to clinical practice. Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: Juni Dev Med Child Neurol 2007; 49 (Suppl.110):21. Ketelaar M, Rameckers E, van Essen P, Visser J, Verschuren O. Functional physical therapy. Instructional Course European Academy of Childhood Disability (EACD). Groningen: Juni Meeteren J van, Roebroeck ME, Celen E, Donkervoort M, Stam HJ, Transition Research Group South West Netherlands. Functional activities of the upper extremity of young adults with cerebral palsy: a limiting factor for participation? Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: Juni Congresboek 2007: 60. Meeteren J van, van Rijn RM, Selles RW, Roebroeck ME, Stam HJ. Grip strength parameters and functional activities in young adults with unilateral cerebral palsy compared with healthy subjects. Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: Juni Congresboek 2007: 60. Nijhuis BJG, Reinders-Messelink HA, Blécourt ACE de, Hitters WMGC, Groothoff JW, Nakken H, Postema K. Family-centered care in family-specific teams. Presentatie European Academy of Childhood Disability (EACD). Groningen: Juni Dev Med Child Neurol 2007; 49 (Suppl.110):14. Nijhuis BJG, Reinders-Messelink HA, Blécourt ACE de, Boonstra AM, Ties J, Groothoff JW, Nakken H, Postema K. Goal setting in Dutch pediatric rehabilitation. Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: Juni Congresboek 2007: 50. Nieuwenhuijsen C, van der Slot WMA, Roebroeck ME, Bergen MP, van den Berg-Emons HJG, Stam HJ & The Transition Research Group. Everyday physical activity in adults with bilateral spastic cerebral palsy: preliminary results. Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: Juni Congresboek 2007: 39. Rentinck ICM, Ketelaar M, Jongmans MJ, Gorter JW. The status of resolution of mothers of infants with cerebral palsy. Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: Juni Congresboek 2007: 46. Roebroeck ME. Participation and health care issues of young adults with a disabling condition since childhood. Presentation. International Workshop on Quality of Life for the young adult with neurodisability. London, May Roebroeck ME, Donkervoort M, Wiegerink DJHG, van Meeteren J, Stam HJ, on behalf of the Transition Research Group South West Netherlands. Transition into adulthood of young adults with cerebral palsy: Limitations in achieving independent life. Presentatie American Academy of Cerebral Palsy and Developmental Medicine (AACPDM). Vancouver, Canada: October Dev Med Child Neurol 2007; 49 (supplement 111):22. Roebroeck ME, Stam HJ, Transition Research Group. Transition into adulthood, adult life and lifespan care for persons with a disabling condition since childhood. Presentation. Rehabilitation Center, Sahlgrenska Universiteitssjukhuset, Göteborg, November Roebroeck ME, HJG van den Berg-Emons HJG, Donkervoort M, van Meeteren J, Pesch-Batenburg JMFB, Stam HJ, on behalf of the Transition Research Group. Lifespan care issues of transition into adulthood and adult life of patients with a disabling condition since childhood. Presentatie European Academy of Childhood Disability (EACD). Groningen: Juni Dev Med Child Neurol 2007; 49 (Suppl):16. Roebroeck ME, van Meeteren J, van der Slot W, Buffart LM, Verhoef JAC, Hilberink SR, Stam HJ. Specialised rehabilitation care for young adults with a disability. Instructional course European Academy of Childhood Disability (EACD). Groningen: Juni Smits DW, Van Groenestijn AC, Becher JG, Van Schie PEM, Dallmeijer AJ, Ketelaar M, Gorter JW. Clinical assessment of selective motor control in children aged 5-7 years with cerebral palsy. 16

17 Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: Juni Congresboek 2007: 51. Stam HJ. Lifespan care issues of transition into adulthood and adult life of patients with a disabling condition since childhood. Olle Höök memorial lecture. Initiated by the Journal of Rehabilitation Medicine and Foundation for Rehabilitation Information. Stockholm, November Vegt M van der, Roebroeck ME, Nieuwenhuijsen C, van Meeteren J, van der Heijden-Maessen HCM, Stam HJ. Upper limb dysfunction and limitations in functional activities in young adults with cerebral palsy: prevalence and mutual correlations. Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: Juni Congresboek 2007: 52. Wiegerink DJHG, van der Doef S, Meihuizen-de Regt MJ. Let s talk about sex. Instructional course European Academy of Childhood Disability (EACD). Groningen: Juni Congresboek 2007:

18 2006 Wetenschappelijke publicaties Odding E, Roebroeck ME, Stam HJ. The epidemiology of cerebral palsy. Incidence, impairments and risk factors. Disabil Rehabil 2006; 28: Schuengel C, Voorman J, Stolk J, Dallmeijer A, Vermeer A, Becher J. Self-worth, perceived competence, and behavior problems in children with cerebral palsy. Disabil Rehabil 2006; 28(20): Siebes RC, Ketelaar M, Wijnroks L, van Schie PE, Nijhuis BJ, Vermeer A, Gorter JW. Family-centred services in The Netherlands: validating a self-report measure for paediatric service providers. Clin Rehabil. 2006;20(6): Voorman JM, Dallmeijer AJ, Schuengel C, Knol DL, Lankhorst GJ, Becher JG. Activities and participation of 9 to 13 year-old children with cerebral palsy. Clin Rehabil 2006; 20(11): Wiegerink D, Roebroeck ME, Donkervoort M, Stam HJ, Cohen-Kettenis PT. Social and sexual relationships of adolescents and young adults with cerebral palsy: a review. Clin Rehabil 2006; 20: Proefschrift J. van Meeteren. Assessment of functions and functional activities of the upper extremity. Thesis. Rotterdam: Erasmus MC, University Medical Center, (Hoofdstukken in) Boeken Ketelaar M. Een meetinstrument kiezen: Waar let ik op? In: Leerboek VRA: Klinimetrie bij kinderen en jongeren 2006, p Nijmegen: PAOG/VRA. Ketelaar M, Bruil J. Meetinstrumenten. B: Voor kwaliteit van leven, maatschappelijke participatie en competentiebeleving. In: R v Empelen, R Nijhuis-van der Sanden, A Hartman (Ed.), Kinderfysiotherapie. Maarssen: Elsevier; p Schoemaker M, Ketelaar M, Smits-Engelsman B. Meetinstrumenten. A: Voor de motorische ontwikkeling van kinderen. In: R v Empelen, R Nijhuis-van der Sanden, A Hartman (Ed.), Kinderfysiotherapie. Maarssen: Elsevier; p Vakpublicaties Donkervoort M, Roebroeck ME, Wiegerink DJHG, van der Heijden-Maessen H, Stam HJ. Determinanten van dagelijkse activiteiten en sociale participatie van jongeren met cerebrale parese. Revalidata 2006; 131: Hilberink SR, Roebroeck ME, Nieuwstraten W, Jalink L, Verheijden JMA, Stam HJ. Gezondheidsklachten bij volwassenen met cerebrale parese: naar een levensloopbenadering. Revalidata 2006; 134: Nieuwenhuijsen C, Donkervoort M, Wiegerink DJHG, Roebroeck ME, Stam HJ. Zorgbehoefte en zorggebruik bij jongvolwassenen met cerebrale parese. Revalidata 2006; 131: Rentinck I, Gorter JW. Boekbespreking: Verder Kijken. Ontwikkelingen in de revalidatiepsychologie. H. Eilander, K. Beers en L. de Vos (Red). Nederlands Tijdschrift voor Geneeskunde 2006; 150(28): Roebroeck ME, Transition Research Group. De kinderrevalidatie, en dan? Transitie naar volwassenheid en functioneren als volwassene. Revalidata 2006; 131: Roebroeck ME en Transition Research Group. De kinderrevalidatie, en dan? Transitieonderzoek in Zuidwest Nederland. Nieuwsbrief Sectie Revalidatie, Nederlands Instituut van Psychologen, november Slot WMA van der, Roebroeck ME, Landkroon A, Terburg M, van den Berg-Emons HJG, Stam HJ. Dagelijkse lichamelijke activiteit en participatie bij volwassenen met een hemiparetische cerebrale parese. Revalidata 2006; 131: 30. Wiegerink DJHG, Donkervoort M, Roebroeck ME, Cohen-Kettenis PT, Stam HJ. Sociale en seksuele relaties bij jongeren met cerebrale parese (CP) vergeleken met Nederlandse leeftijdgenoten. Revalidata 2006; 131:

19 Wiegerink DJHG, Donkervoort M, Roebroeck ME, Stam HJ, Cohen-Kettenis PT. Sociale en seksuele relaties bij jongeren met cerebrale parese (CP) vergeleken met Nederlandse leeftijdgenoten. Nieuwsbrief Sectie Revalidatie, Nederlands Instituut van Psychologen 2006; 20 (47), Wiegerink DJHG. Het Rotterdams Transitieprofiel. Nieuwsbrief Sectie Revalidatie, Nederlands Instituut van Psychologen, november BOSK Magazine (Tijdschrift Oudervereniging) BOSK Magazine, nr 1, 2006: PERRIN 5-9: Onderzoek bij schoolgaande kinderen met cerebrale parese JW Gorter, DW Smits, PEM van Schie. BOSK Magazine, nr 2, 2006: Revalidatieonderzoek bij kinderen met cerebrale parese: Naar een beter inzicht in de revalidatiegeneeskunde, de opvoeding en het onderwijs B. Nijhuis. BOSK Magazine, nr 3, 2006: Revalidatieonderzoek bij kinderen met cerebrale parese: PERRIN CP 0-5 M. Nijnuis, JW Gorter, M Ketelaar. BOSK Magazine, nr 4, 2006: Revalidatieonderzoek bij kinderen met cerebrale parese: PERRIN CP 9-16 J. Voorman, M. van Eck. BOSK Magazine, nr 5, 2006: Revalidatieonderzoek bij jong volwassenen met cerebrale parese: PERRIN CP M. Donkervoort. Presentaties en abstracts internationale congressen Gorter JW, Ketelaar M. Use of the Gross Motor Function Classification System by professionals in the Netherlands: the need for implementation strategies. Presentatie European Academy of Childhood Disability (EACD). Barcelona: October Developmental Medicine and Child Neurology 2006; 48 (suppl 107): 8. Ketelaar M, Rentinck I, Jongmans M, Gorter JW. Children with cerebral palsy : What about the parents. Presentatie European Academy of Childhood Disability (EACD). Barcelona: October Developmental Medicine and Child Neurology 2006; 48 (suppl 107): Ketelaar M, Suir I, Bruil J, Gorter JW. Development of a condition-specific quality of life instrument for young children with cerebral palsy: a feasibility study. Posterpresentatie European Academy of Childhood Disability (EACD). Barcelona: October Developmental Medicine and Child Neurology 2006; 48 (suppl 107): 34. Smits DW, van Schie PEM, Ketelaar M, Dallmeijer AJ, Becher JG, Gorter JW. A longitudinal study on the course and determinants of daily functioning in primary school aged children with cerebral palsy. Posterpresentatie European Academy of Childhood Disability (EACD). Barcelona: October 2006.Revista de Neurologica 2006; 43 (suppl 2): S Van Eck M, AJ Dallmeijer, H. Beckerman, JM Voorman, Becher JG. Physical activity level and sports participation of adolescents of 12 to 16 years with cerebral palsy. Presentatie European Academy of Childhood Disability (EACD). Barcelona: november Developmental Medicine and Child Neurology 2006; 48 (suppl 107): 20. Wiegerink DJHG, Roebroeck ME, Donkervoort M, Stam HJ, Cohen-Kettenis PT. Social and sexual relationships of youth with CP in the Netherlands. Poster. 32th Annual Meeting, International Academy of Sex Research, Amsterdam,

20 2005 Wetenschappelijke publicaties Gorter JW, Boonacker CWB, Ketelaar M. Rubriek Meten in de praktijk. Gross Motor Function Classification System (GMFCS). Nederlands Tijdschrift voor Fysiotherapie 2005; 115(4): 116. Proefschrift Wassenberg-Severijnen, J.E. Pediatric Evaluation of Disability Inventory (PEDI). Calibrating the Dutch version. Utrecht: Universiteit Utrecht, ISED. (Hoofdstukken in) Boeken Gorter JW. De diagnose: wat ouders willen weten. In: van Loen EHH, Verheijden JMA (Red). Kind en Hemiparese. Beleven en behandelen. Utrecht: BOSK; p Gorter JW, Ketelaar M. Wat is de beste behandeling. In: van Loen EHH, Verheijden JMA (Red). Kind en Hemiparese. Beleven en behandelen. Utrecht: BOSK; p Ketelaar M. De Gross Motor Function Measure in Nederland: Wetenschappelijk onderzoek en gebruik in de praktijk van de kinderfysiotherapie. Bundelboek Nederlandse artikelen GMFM ter gelegenheid van de promotie van Dianne Russell Wassenberg-Severijnen JE, Custers JWH. PEDI-NL- Vertaling en berwerking van de PEDI. Vragenlijst voor de inventarisatie van alledaagse vaardigheden bij kinderen. Amsterdam: Harcourt Publishers; Vakpublicaties Burger CA, Warmenhoven NJC, Rol M, Roebroeck ME. Transitie naar volwassenheid. De kinderrevalidatie, en dan? Revalidata 2005; 126: Gorter JW, Nijnuis M, Smits DW. Multidisciplinair onderzoek bij jonge kinderen met cerebrale parese: PERRIN CP 0-4 en PERRIN CP 5-9. Kinderfysiotherapie 2005; 17(46); 37. Gorter JW, Custers J, Wassenberg-Severijnen J. De PEDI-NL. Een nieuw instrument voor het meten van het dagelijkse functioneren van kinderen. Kinderfysiotherapie 2005; 17(46); Ketelaar M. Meetinstrumenten binnen het PERRIN-onderzoek. In JG Becher, CBG Maathuis (Red), Leerboek VRA: Cerebrale Parese. Stand van Zaken en Nieuwe Ontwikkelingen 2005, p Nijmegen: PAOG/VRA. BOSK Magazine (Tijdschrift Oudervereniging) BOSK Magazine, nr 1, 2005: Revalidatieonderzoek bij kinderen met cerebrale parese. PEDI-NL nadert zijn voltooiing - J.E. Wassenberg-Severijnen. BOSK Magazine, nr 2, 2005: Revalidatieonderzoek bij kinderen met cerebrale parese. PERRIN CP 0-4 en GMFCS - J.W. Gorter en M. Ketelaar. BOSK Magazine, nr 2, 2005: Lichamelijke beperking en zelfbeeld - Sander Hilberink en Diana Wiegerink. BOSK Magazine, nr 3, 2005: PERRIN CP 9-15 wordt 9-16 jaar: een onderzoek naar de functionele prognose van kinderen met Cerebrale Parese in de leeftijd van 9 tot 16 jaar - J.M. Voorman en M. van Eck. BOSK Magazine, nr 4, 2005 Revalidatieonderzoek bij jong volwassenen met cerebrale parese - M. Donkervoort. Abstracts (inter)nationale congressen Donkervoort M, Wiegerink DJHG, Roebroeck ME, Stam HJ. Transition into adulthood and its relation with participation in adolescents and young adults with cerebral palsy. Dev Med Child Neurol 2005; 47, Supplement 103: Presentatie European Academy of Childhood Disability (EACD). Monaco, november Donkervoort M, Roebroeck ME, Wiegerink DJHG, Stam HJ. Determinants of daily activities and social participation of adolescents and young adults with cerebral palsy. Proceedings EACD 2005, pag.78. Poster European Academy of Childhood Disability (EACD). Monaco, november Meeteren J van, Roebroeck ME, Ceelen E, Grund A, Nieuwenhuijsen C, Stam HJ. Validity of an arm-hand function classification system (Manual Ability Classification System) in young adults with cerebral palsy. Dev Med Child Neurol 2005; 47, Supplement 103: 59. Poster European Academy of Childhood Disability (EACD). Monaco, november