Hoofdstuk 1 Introductie: psychologische interventies bij chronische somatische ziekten

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1 Literatuur Hoofdstuk 1 Introductie: psychologische interventies bij chronische somatische ziekten Aspinwall, L.G., & Taylor, S.E. (1997). A stitch in time: Self-regulation and proactive coping. Psychological Bulletin, 121, Aujoulat, I., d Hoore, W., & Deccache A. (2007). Patient empowerment in theory and practice: Polysemy or cacophony. Patient Education and Counseling, 66, Bandura, A. (1986). Social foundations of thought and action: A Social Cognitive Theory. Englewood Cliffs, NJ: Prentice-Hall. Bastelaar, K.M.P. van, Pouwer, F., Cuijpers, P., & Snoek, F.J. (2009). Online cognitieve gedragstherapie voor diabetespatiënten met depressieve klachten: een gerandomiseerd gecontroleerd onderzoek. Psychologie & Gezondheid, 37, Dunbar-Jacob, J., & Mortimer-Stephens, M.K. (2001). Treatment adherence in chronic disease. Journal of Clinical Epidemiology, 54, S Epping-Jordan, J., Bengoa, R., Kawar, R., & Sabate, E. (2001). The challenge of chronic conditions: WHO responds. British Medical Journal, 323, Garssen, B. (2009). Psychologische factoren bij het ontstaan en beloop van kanker. In H. de Haes, L. Gualthérie van Weezel, & R.Sanderman (red.), Psychologische patiëntenzorg in de oncologie (pp ). Assen: Van Gorcum. Gazmararian, J.A., Ziemer, D.C., & Barnes, C. (2009). Perceptions of barriers to self-care management among diabetic patients. Diabetes Educator, 35, Hinnen, C., Ranchor, A.V., Baas, P.C., Sanderman, R., & Hagedoorn, M. (2009). Partner support and distress in women with breast cancer: The role of patients awareness of support and level of mastery. Psychology & Health, 24, Ingleby, D. (2008). Waarom interculturele psychologie? In J. Knipscheer, & R. Kleber, Psychologie en de multiculturele samenleving (2de druk; pp ). Den Haag: Boom Onderwijs. Knipscheer, J., & Kleber, R. (2008). Psychologie en de multiculturele samenleving (2 de druk). Den Haag: Boom Onderwijs. Knipscheer, J., Mooren, T., & Kurt, A. (2008). Klinische psychologie in cultureel perspectief. In J. Knipscheer, & R. Kleber, Psychologie en de multiculturele samenleving (2 de druk; pp ). Den Haag: Boom Onderwijs. J. Jaspers, H. van Middendorp, Psychosociale zorg bij chronische ziekten, DOI / , 2010 Bohn Stafleu van Loghum, onderdeel van Springer Uitgeverij

2 158 Psychosociale zorg bij chronische ziekten Kool, M.B., Van Middendorp, H., Boeije, H.R, & Geenen, R. (2009). Understanding the lack of understanding: Invalidation from the perspective of the patient with fibromyalgia. Arthritis & Rheumatism Arthritis Care & Research, 61, Lerman, I. (2005). Adherence to treatment: The key for avoiding long-term complications of diabetes. Archives of Medical Research, 36, Lin, E.H.B., Katon, W., Von Korff, M., Rutter, C., Simon, G.E., Oliver, M., Ciechanowski, P., Ludman, E.J., Bush, T., & Young, B. (2004). Relationship of depression and diabetes selfcare, medication adherence, and preventive care. Diabetes Care, 27, Looise, B.J., Van der Poel, F., Bos, V. (2006). Diabeteseducatie in Nederland - State of the art van methoden en materialen. Woerden: Nationaal Instituut voor Gezondheidszorgbevordering en Ziektepreventie (NIGZ). Maes, S., Leventhal, H., & De Ridder, D. (1996). Coping with chronic disease. In M. Zeidner, & N. Endler (eds.), Handbook of coping: Theory, research, applications (pp ). New York: Wiley. Mens-Verhulst, J. van, & Bekker, M. (2008). Gezondheidspsychologie in een pluriforme de samenleving. In J. Knipscheer, & R. Kleber, Psychologie en de multiculturele samenleving (2 druk; pp ). Den Haag: Boom Onderwijs. Polonsky, W.H., Anderson, B.J., Lohrer, P.A., Welch. G., Jacobson, A.M., Aponte, J.E., & Schwartz, C.E. (1995). Assessment of diabetes-related distress. Diabetes Care, 18, Ridder, D. de, Geenen, R., Kuijer, R., & Van Middendorp, H. (2008). Psychological adjustment to chronic disease. Lancet, 372, Rothenberg, R.B., & Koplan, J.P. (1990). Chronic disease in the 1990s. Annual Review of Public Health, 11, Ryan, R.M., & Deci, E.L. (2002). An overview of self-determination theory. In E.L. Deci, & R.M. Ryan (eds.), Handbook of self-determination research (pp. 3-36). Rochester: The University of Rochester Press. Safford, M.M., Russell, L., Suh, D.C., Roman, S., & Pogach, L. (2005). How much time do patients with diabetes spend on self-care? Journal of the American Board of Family Practice, 18, Sanchez, A., Grandes, G., Cortada, J.M., Pombo, H., Balaque, L., & Calderon, C. (2009). Modelling innovative interventions for optimising healthy lifestyle promotion in primary health care: Prescribe Vida Saludable phase I research protocol. BMC Health Services Research, 9, 103. Sloots, M., Scheppers, E.F., Van de Weg, F.B., Dekker, J.H., Bartels, E.A., Geertzen, J.H., & Dekker, J. (2009). Higher dropout rate in non-native patients than in native patients in rehabilitation in The Netherlands. International Journal of Rehabilitation Research, 32, Sprangers, M.A.G., De Regt, E.B., Andries, F., Van Agt, H.M.E., Bijl, R.V., De Boer, J.B., Foets, M., Hoeymans, N., Jacobs, A.E., Kempen, G.I.J.M., Miedema, H.S., Tijhuis, M.A.R., & De Haes, H.J.M. (2000). Which chronic conditions are associated with better or poorer quality of life? Journal of Clinical Epidemiology, 53, Sprangers, M.A.G., & Schwartz, C.E. (1999). Integrating response shift into health-related quality of life research: A theoretical model. Social Science & Medicine, 48, Stanton, A.L., Collins, C.A., & Sworowski, L.A. (2001). Adjustment to chronic illness: Theory and research. In A. Baum, T.A. Revenson, & J.E. Singer (2001), Handbook of health psychology (pp ). Mahwah, NJ: Erlbaum.

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4 160 Psychosociale zorg bij chronische ziekten Cox, D.J., Gonder Frederick, L., Polonsky, W., Schlundt, D., Kovatchev, B., & Clarke, W. (2001). Blood glucose awareness training (BGAT-2): Long-term benefits. Diabetes Care, 24, Cox, D.J., & Gonder Frederick, L. (1992). Major developments in behavioral diabetes research. Journal of Consulting and Clinical Psychology, 60, Davies, M.J., Heller, S,, Khunti, K,, & Skinner, T.C. (2008). The DESMOND educational intervention. Chronic Illness, 4, Diabetes Control and Complications Trial Research Group (1993). The effects of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus. New England Journal of Medicine, 329, Diabetes Control and Complications Trial Research Group (DCCT) (1996). Lifetime benefits and costs of intensive therapy as practiced in the diabetes control and complications trial. The Diabetes Control and Complications Trial Research Group [see comments] [published erratum: Journal of the American Medical Association, 1997, 278, 25]. Journal of the American Medical Association, 276, Diabetespsychology.nl (2008). Diabetespsychology. [online]. Funnell, M.M., & Anderson, R.M. (2004). Empowerment and self-management of diabetes. Clinical Diabetes, 22, Funnell, M.M., Anderson, R.M., Arnold, M.S., Barr, P.A., Donnelly, M., Johnson, P.D., et al. (1991). Empowerment: An idea whose time has come in diabetes education. Diabetes Educator, 17, Glasgow, R.E., & Eakin, E.G. (2000). Medical office-based interventions. In F.J. Snoek, & T.C. Skinner (eds.), Psychology in diabetes care (1 st ed., pp ). Chichester: John Wiley & Sons. Glasgow, R.E., Eakin, E.G., & Toobert, D.J. (1996). How generalizable are the results of diabetes self-management research? The impact of participation and attrition. Diabetes Educator, 22, Glasgow, R.E., Hiss, R.G., Anderson, R.M., Friedman, N.M., Hayward, R.A., Marrero, D.G., et al. (2001a). Report of the health care delivery work group: Behavioral research related to the establishment of a chronic disease model for diabetes care. Diabetes Care, 24, Glasgow, R.E., McKay, H.G., Piette, J.D., & Reynolds, K.D. (2001b). The RE-AIM framework for evaluating interventions: What can it tell us about approaches to chronic illness management? Patient Education and Counseling, 44, Gonder Frederick, L.A., & Cox, D.J. (1986). Behavioral responses to perceived hypoglycemic symptoms. Diabetes Education, 12, Grigsby, A.B., Anderson, R.J., Freedland, K.E., Clouse, R.E., & Lustman, P.J. (2002). Prevalence of anxiety in adults with diabetes: A systematic review. Journal of Psychosomatic Research, 53, Groot, M. de, Anderson, R., Freedland, K.E., Clouse, R.E., & Lustman, P.J. (2001). Association of depression and diabetes complications: A meta-analysis. Psychosomatic Medicine, 63, Ismail, K., Thomas, S.M., Maissi, E., Chalder, T., Schmidt, U., Bartlett, J., Patel, A., Dickens. C.M., Creed, F., & Treasure, J. (2008). Motivational Enhancement Therapy with and without Cognitive Behavior Therapy to treat Type 1 diabetes. Annals of Internal Medicine, 149,

5 Literatuur 161 Ismail, K., Winkley, K., & Rabe-Hesketh, S. (2004). Systematic review and meta-analysis of randomised controlled trials of psychological interventions to improve glycaemic control in patients with type 2 diabetes. Lancet, 363, Jacobson, A.M. (1996). The psychological care of patients with insulin-dependent diabetes mellitus. New England Journal of Medicine, 334, Jonge, P. de, Roy, J.F., Saz, P., Marcos, G., & Lobo, A. (2006). Prevalent and incident depression in community-dwelling elderly persons with diabetes mellitus: Results from the ZARADEMP project. Diabetologia, 49, Keers, J.C. (2004a). Diabetes rehabilitation: Effects and utilisation of a multidisciplinary intensive education programme [Dissertation]. Groningen: Northern Centre for Healthcare Research, University of Groningen. Keers, J.C., Blaauwwiekel, E.E., Hania, M., Bouma, J., Scholten Jaegers, S.M., Sanderman, R., et al. (2004b). Diabetes rehabilitation: Development and first results of a Multidisciplinary Intensive Education Program for patients with prolonged self-management difficulties. Patient Education and Counseling, 52, Keers, J.C., Bouma, J., Links, T.P., Ter Maaten, J.C., Gans, R.O.B., Wolffenbuttel, B.H.R., et al. (2006). One-year follow-up effects of diabetes rehabilitation for patients with prolonged self-management difficulties. Patient Education and Counseling, 60, Keers, J.C., Groen, H., Sluiter, W.J., Bouma, J., & Links, T.P. (2004c). Cost and benefits of a multidisciplinary intensive diabetes education programme. Journal of Evaluation in Clinical Practice, 11, Knol, M.J., Twisk, J.W., Beekman, A.T., Heine, R.J., Snoek, F.J., & Pouwer, F. (2006). Depression as a risk factor for the onset of type 2 diabetes mellitus. A meta-analysis. Diabetologia, 49, Lustman, P.J., & Clouse, R.E. (2002). Treatment of depression in diabetes: Impact on mood and medical outcome. Journal of Psychosomatic Research, 53, Lustman, P.J., & Clouse, R.E. (2005). Depression in diabetic patients: The relationship between mood and glycemic control. Journal of Diabetes and its Complications, 19, Lustman, P.J., Griffith, L.S., Clouse, R.E., Freedland, K.E., Eisen, S.A., Rubin, E.H., et al. (1997). Effects of nortriptyline on depression and glycemic control in diabetes: Results of a double-blind, placebo-controlled trial. Psychosomatic Medicine, 59, McCulloch, D.K., Glasgow, R.E., Hampson, S.E., & Wagner, E. (1994). A systematic approach to diabetes management in the post-dcct era. Diabetes Care, 17, Miller, J.H. & Moyers, T. (2002). Motivational interviewing in substance abuse: Applications for occupational medicine. Occupational Medicine, 17, 51-65, iv. Mollema, E.D., Snoek, F.J., & Heine, R.J. (1999). Assessment of perceived barriers in selfcare of insulin-requiring diabetic patients. Patient Education and Counseling, 29, Motivational Interviewing (2008). Motivational Interviewing. [online]. NIGZ (2006). State of the Art; NIGZ report diabeteseducatie. Pibernik-Okanovic, M., Prasek, M., Poljicanin-Filipovic, T., Pavlic-Renar, I., & Metelko, Z. (2004). Effects of an empowerment-based psychosocial intervention on quality of life and metabolic control in type 2 diabetic patients. Patient Education and Counseling, 52, Polonsky, W.H. (1999). Diabetes Burnout: What to do when you can t take it anymore (1st ed.) Alexandria: American Diabetes Association.

6 162 Psychosociale zorg bij chronische ziekten Pouwer, F., Beekman, A.T., Lubach, C., & Snoek, F.J. (2006). Nurses recognition and registration of depression, anxiety and diabetes-specific emotional problems in outpatients with diabetes mellitus. Patient Education and Counseling, 60, Pouwer, F., Beekman, A.T., Nijpels, G., Dekker, J.M., Snoek, F.J., Kostense, P.J., et al. (2003). Rates and risks for co-morbid depression in patients with Type 2 diabetes mellitus: Results from a community-based study. Diabetologia, 46, Pouwer, F., Snoek, F.J., Van der Ploeg, H.M., Ader, H.J., & Heine, R.J. (2001). Monitoring of psychological well-being in outpatients with diabetes - Effects on mood, HbA(1c), and the patient s evaluation of the quality of diabetes care: A randomized controlled trial. Diabetes Care, 24, Rijksinstituut voor Volksgezondheid en Milieu (RIVM) (2009). nl (versie 3.20). Rodin, G., Olmsted, M.P., Rydall, A.C., Maharaj, S.I., Colton, P.A., Jones, J.M., et al. (2002). Eating disorders in young women with type 1 diabetes mellitus. Journal of Psychosomatic Research, 53, Ryan, C.M. (2006). Diabetes and brain damage: More (or less) than meets the eye? Diabetologia, 49, Schachinger, H., Hegar, K., Hermanns, N., Straumann, M., Keller, U., Fehm Wolfsdorf, G., et al. (2005). Randomized controlled clinical trial of Blood Glucose Awareness Training (BGAT III) in Switzerland and Germany. Journal of Behavioral Medicine, 28, Skinner, T.C., Carey, M.E., Cradock, S., Daly, H., Davies, M.J., Doherty, Y., et al. (2006). Diabetes Education and Self-Management for Ongoing and Newly Diagnosed (DESMOND): Process modelling of pilot study. Patient Education and Counseling, 64, Snoek, F. (2004a). Diabetes Mellitus. In G.Pool, F. Heuvel, A. V. Ranchor, & R. Sanderman (eds.), Handboek psychologische interventies bj chronisch-somatische aandoeningen (pp ). Assen: Van Gorcum. Snoek, F.J. ( b). Bij hoog en bij laag: Rede uitgesproken op 1 december 2004 bij de aanvaarding van het ambt als hooglereaar Medische Psychologie, in het bijzonder Psychosociale Diabetologie aan de faculteit Geneeskunde van de Vrije Universiteit/VUMC. Snoek, F.J., Donker, F.J.S., Van Linden van den Heuvell, G.F.E.C., & Wierenga, W.S. (2004c). De inzet van de Medisch Psycholoog bij de behandeling van Diabetes Mellitus: Richtlijnen voor psychologische diagnostiek en behandeling (1st ed.). Sectie Psychologen Algemene/Academische Ziekenhuizen van het Nederlands Instituut van Psychologen. Snoek, F.J., Pouwer, F., Welch, G., & Polonsky, W.H. (2000). Diabetes related emotional distress in Dutch and U.S. diabetic patients. A cross-cultural validity of the Problem Areas in Diabetes Scale. Diabetes Care, 23, Snoek, F.J., & Skinner, T.C. (2002). Psychological counselling in problematic diabetes: Does it help? Diabetic Medicine, 19, Steed, L., Cooke, D., & Newman, S. (2003). A systematic review of psychosocial outcomes following education, self-management and psychological interventions in diabetes mellitus. Patient Education and Counseling, 51, Surwit, R., Van Tilburg, M., Zucker, N., McCaskill, C., Parekh, P., Feinglos, M., et al. (2002). Stress management improves long-term glycemic control in type 2 diabetes. Diabetes Care, 25, Swift, E.E., Chen, R., Hershberger, A., & Holmes, C.S. (2006). Demographic risk factors, mediators, and moderators in youths diabetes metabolic control. Annals of Behavioral Medicine, 32,

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